Advanced Parkinson's. With Severe On & Off Periods With Extreme Pain. Anyone Had Surgery For The Duodopa Pump? Or Switched To Neupro? | MyParkinsonsTea

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Advanced Parkinson's. With Severe On & Off Periods With Extreme Pain. Anyone Had Surgery For The Duodopa Pump? Or Switched To Neupro?
A MyParkinsonsTeam Member asked a question 💭

On and off periods are causing horrible pain that can last for hours with rigidity. Pain is being treating with diaulid but it doesn't help much with the pain. Doctor is suggesting to have surgery so the levodopa is directly delivered into the upper intestine. It's called Duodopa. I am wondering if anyone had similar pain symptoms and has tried Duodopa. Or has switched to the Neupro patch to help.

posted December 26, 2015 (edited)
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A MyParkinsonsTeam Member

I have not tried the pump but do hope to have the DBS surgery for similar symptoms

posted December 30, 2015
A MyParkinsonsTeam Member

I’m so happy to be able and excited you guys h haviing options for Parkinson’s and exploring the options!

Oooorah

posted December 27, 2022
A MyParkinsonsTeam Member

My husband also takes Rytary 5 times a day, 11-12 total pills. It helps at this dose

posted July 15, 2020
A MyParkinsonsTeam Member

I take Rytary 3 times a day extended release my tremor goes on and on only get relief after 1to 2 hours for a good nap!

posted June 14, 2020
A MyParkinsonsTeam Member

My husband was just offered the option to have the procedure for the Duodopa pump and I'm excited to hear that people have had good responses of this method of dispensing levodopa/cardiopa. His off times are getting worse - he currently takes Rytary 3 capsules 4 x's a day and needs to change his dosage closer together, which then causes dyskenisa. Any additional feedback on Duodopa is appreciated.

posted June 21, 2019

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