I Have Been Listening to Stories From Those Who Have had DBS. There is something very troubling to me about this procedure. It has worked for some but not for others.Symptoms got better for some but worse for others. Those with Tremors chose it because of their tremors. For some the tremors went away completely...some still have tremors but can take medication to control them. Some PDers, like myself, do not have tremors. WHY WOULD I, AND FOR WHAT OTHER REASONS, WOULD I CONSIDER UNDERGOING DBS… read more
I had other symptoms such as rigidity, dragging my right foot, unbalance, my right arm didn't swing when I walked. I also had tremors in my right hand and foot. True, the outcome for each person is different, but at the time I considered DBS in December 2012, I was ready and convinced I wasn't going to get better and I thought what do I have to lose. I had the surgery May 6, 2013 at age 59 and to this day, I don't regret it one bit. It's a serious operation and there are risks and it can take its toll on you if you are not mentally and physically prepared for it. And you MUST have someone to be with you when you come home from hospital and stay with you till you can manage on your own. I had over 65 staples in my head and chest and if you are squeamish, DBS is probably not for you. As I stated earlier, everyone is different, but I value quality of life, not quantity. I still have some difficulties and I had to retire early because of the Parkinson's, but I'm not any worse. I have an excellent neurologist/movent disorder specialist with an excellent staff of professionals who care and do their very best. Thanks for listening.
The Dbs has been amazing for my husband. His tremors are gone, his speech has greatly improved, his balance is improved, and his stopping gate is gone. I wish this worked so well for others. His meds did not help any of the above and the only way he received relief was from the surgery. He only spent hrs in the hospital but the surgery was only 2 hrs long.
Before DBS I was taking carbodopa/levodopa 25/250 = 6 times a day, 25/100 = 6 times a day, Alternating between the two every 2hours. Entacapone 6x a day. Amantidine 4x a day, and Azilect once a day. The dyskinesia caused my meds was far worse than the PD. I could not walk without a cane and fell often. Since DBS my meds have been reduced by 60% and I no longer take the amantidine. I walk without assistance (no cane), and I haven't fallen since DBS. My balance issues were caused by the dyskenisia. Prior to the surgery, we were unsure whether this was the case. Had my PD caused them, DBS would have been useless in correcting my balance issues. My speech is unaffected by the DBS. I no longer have issues with sweating or interrupted sleep caused by muscle cramps. For me, it gave me my life back. My results aren't typical though. I still have a slight tremor in the mornings but we have almost completely tune it out
How nice it is to hear a good report of DBS. I have worries about it as I had a stroke before I had Parkinson's so am not sure I want an operation. The comments you see from those who have had the treatment vary so much.
I had DBS for tremors. The PD drugs make me sick so I'm on no medication just DBS. I think it so much depends on the movement disorder specialist. I had some that slowed the process down and then I found one that is excellent. My adjustments are very few and fast now. It was such a gift from God for me.