Movement Disorder Specialist | MyParkinsonsTeam

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Movement Disorder Specialist
A MyParkinsonsTeam Member asked a question đź’­

I saw a recommendation here about a movement disorder specialist. Couldn't get appt til august 31st.

I'm newly diagnosed - and am taking 2 Sinemet p/d . Having some blurred vision, and no relief from tremor.
Sorry if this seems trivial. I'm so unsettled.

Neurologist doesn't seem interested .

posted March 11, 2016
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A MyParkinsonsTeam Member

your question is not trivial because having Parkinson's is a hard road to travel. if you are finding your specialist not interested go find another one. I had the same problem as you and you need a specialist with whom you feel comfortable with

posted March 13, 2016
A MyParkinsonsTeam Member

@ robsct - I hope you are having a good day -----thanks so much for your reply. I am on the neurologist hunt again...the one I have didn't call me back today, and I know they're busy, but it seems I'm just a number and that makes everything worse.

I'm trying to distract myself by baking for my church, and also for my husband's for this weekend.

i have also sent an email to my Parkinson's Advocate Partner.-( Partners in Parkinson's) I've talked with her once, and she's going to call again on 3/21. - In the meantime thank you, bless you..

posted March 11, 2016
A MyParkinsonsTeam Member

I had tremors, particularly in my left hand. I was very overweight and the dr told me to lose weight slowly. Because my dry suddenly got worse, I couldn't eat a lot of different things and lost 40 lbs in 3 mo and the tremor went away. Better no to lose so fast, but it sure answered tremor question.

posted March 15, 2016
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Thanks for the truly sensitive reality check...I was feeling guilty for feeling sick...and feeling worse for being in tears in the doctor's offices (Neuro); and in the other specialists' offices : including Cardiology; ENT; Vascular; pulmonology; endocrinology, and physical therapist.

The problems I have with Meniere's Syndrome , since 1983, Pulsatile Tinnitus for at least 3 years is not rare - but not common, many people experience it to debilitation, some to suicide --- is most likely the instigator to the suicidal ideation and symptoms of Parkinsonism .

- also two, of my brothers passed away suddenly (though of chronic illnesses) in the Spring of 2014, in two different states, (far in distance both geographically and emotionally) within less than one month .---and the mourning was never really completed maybe because the sensitive dynamics of the trauma wasn't handled carefully. I think it was so incredible to all of us (four sisters, and four other brothers) that we acted badly toward each other and got "stuck".

I think - I may have had a breakdown of some degree - Subsequently some of my siblings and I came together, others have healed privately...at least I hope they have.

I realize now that the depression expanded to physical issues, and if any of my friends don't accept that theory I beg them to hear me. We need each other in our lives to help us find our way.

I didn't think I'd be so expressive but I'm happy I was and hope it is helpful to you and the friends I've made on my Parkinson's team.

I am still pursuing both the diagnosis of my symptoms and investigation the Pulsatile Tinnitus at Dartmouth-Hitchcock Medical Center in New Hampshire.

It is my intention to stay in touch with this community of brave and kindly people...we can learn from each other. Certainly I have learned many things about self-awareness, good judgement, and empathy.

God bless you.

posted March 18, 2016
A MyParkinsonsTeam Member

I concur with Cherie, Get another neurologist, a specialist in PD. Also find a support group. Often you can learn more from other Parkies. Plus you will realize you are not alone in this experience. I think I cried for the first 2 months after diagnosis . then started exercise classes, support group. Had a good MD from the start so I felt I was in good hands but the PD friends I have made have been the real life savers.

posted March 18, 2016

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