Yes, do it!! It is a difficult road and not for the faint of heart, but like giving birth, the rewards far outweigh the procedure! I had it done at Northwestern University Hospital by Dr. Joshua Rosenov, under the direction of Dr. Cindy Zadikoff, one of the nation's top physicians dealing with movement disorders.
I had bilateral DBS, so I had to have two surgeries. (The doctors did not think that I could tolerate two implants in one surgery. I have severe and painful dystonia in my entire body. I was nearly chair bound, and would have needed care from a facility, rather than be able to live at home with my husband.)
One of the things that I have noticed is that the patient gets "painted into a corner", that the ends no longer work or you can't tolerate them. So the only relief lies with DBS.
Now, I am able to walk, I can sit relatively quietly. I am able to play with my grandchildren, on a limited basis. Fatigue is still an issue for me. As well as, insomnia and often relentless leg syndrome. Often, I hear,"Well, you look good."
I can give you more information, if you like. Let me know what you decide.

Do it! I had DBS in February and it changed my life. I no longer shake or use medicine. My thinking has improved

@A MyParkinsonsTeam Member,
So far, the only downsides of DBS, there are certain stores that I cannot enter because the safety devices at the entrance have turned off the DBS!! I usually can feel the difference in about 20 minutes. So, I have my own controls that I carry with me at all times. So, once I am aware of the fact, I can quickly turn it back on.
Also, the adjustment period, once you are turned on, you have to wrestle with feeling weird, working your way to your new normal!!

Mentioned Users

A MyParki...

Hello. There are a few of us here who have had the DBS. Post @A MyParkinsonsTeam Member and have him tell you his success story. Just click on his name to post him. Sterling

Mentioned Users

A MyParki...

Yes ma'am I have just had DBS surgery. On March 29 and stage 2 on April 5. I'm not thru yet with my stimulator. And I would do it all over again. Bald head and all . But I'm kinda getting use to that. Thank heavens for wigs.