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Does Anyone With PD Have Interstitial Lung Disease Or Scarring Due To Fluid Aspirition? I Would Appreciate Some Advice To Help My Husband.

Does Anyone With PD Have Interstitial Lung Disease Or Scarring Due To Fluid Aspirition? I Would Appreciate Some Advice To Help My Husband.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. Hello girlfriend. I have a sister who has been diagnosed with Pulmonary Fibrosis with the presence of interstitual scarring. Is your husband using oxygen? The only recourse for my sister is lung transplants...but the list is very long and she will be 66 this year. Selections for these lung transplants are most likely decided according to age. I told her that if she survived me that I would ask that she get my healthy (but old) lungs. That would be better than no lungs. :-) Her disease is incurable like Parkinson's and her doctor's prognosis for her is 3 to 5 years. I can't imagine life without her. She still does everything and has no limitations at this point. She is remarkable.

Now your husband's diagnosis is not Pulmonary Fibrosis right? Did they tell him what caused the interstitual scarring? What is his prognosis? Best wishes. Sterling

edited, originally posted over 5 years ago
A MyParkinsonsTeam Member said:

My husband had interstitial lung disease or scarring due to Parkinsons aspiration of liquids. He was told to thicken all liquids last January but would not do so. Now his lungs are worse and he must use oxygen for sleep and movement. He spent three days in the hospital because of low oxygen saturation and now must thicken all liquids or else. He is going to rehab tomorrow for a few weeks of rehab to regain his strength.

posted over 5 years ago
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