Since i found out i have parkinsons i found myself isolating myself from family and friends. Its hard being with a group of my friends most just turning forty like myself. I see them watching me when we're trying to have dinner and my hand is shaking so bad i can barely get the food to my mouth. I don't want their pity. We go to the movies and we have to sit in special seats because i can't climb the stairs and have to walk with a walker. I wonder if anyone else struggles with these feelings… read more
I used to be embarressed because people would look at me as if i was a junkie or alcooholic in need...others would ofer me sweaters or blankies thinking i was cold. So i printed a t-shirt saying i'm not in need of a drink, i just have parkinson. And when the look at my trembling hands and feet i just tell then right off that i have PD. And i do not complain or taking in the pity but i like it when the ask about it. It's surprising how people don't know that it's not only having trembling hands, even hospital nurses! Of course, i take care of timing my med tighter and avoid stress and emotional situations. I've accepted James P. In my life. Not much choice, he won't leave me! I've learn to laugh about it now hut had 3 years of depression. So forget what others think andr enjoy the good days!
I think we all have certain fears and self-consciousness about being in public. I love music and I sing solos sometimes during our church services. My tremors sometimes get out of control when I get nervous or stressed, so when I stand up front to sing, there is a whole lot of shaking going on. I can't sing as much or as often as I used to either because my voice gets weak and goes away. But, I still like to try, and as long as people are blessed, God is glorified, and I am satisfied. I do go out a lot with other people, but I really don't let it bother me. If I see someone staring, I just start up a conversation with them, and by the end of the conversation, they know why I am shaking. I just love living life and can't stop.
Everyone has their cross to bare, my husband has had Parkinson's for 17 years we,be heard -and seen it all ,don,t let it get you down ,you,be got a long and beautiful life ahead of you ,nobody knows the future, so live for today enjoy something in every day , good luck to you
I think most of us have had those feelings at one time or another.its just something you need to.to overlook .they.arent trying to be mean.i.think its just curiosity.mremember when you have PD.you.have to.ADJUST and ADAPT ITS A NEW LIFE STYLE
I found since being diagnosed with Parkinson's that all my friends support me even people who knew me at work as I worked in retail regular customers support me I find the embarrassment is on my end I usually joke or use humor to disperse my embarrassment or self-consciousness I do find it hard to eat certain foods my wife has to cut my steak up when we go out to eat I am now leading church service at the pulpit trying to do as much as I can while I can I find with the Lord he is my strength my self-consciousness in my everyday struggles with Parkinson's wish you good luck and prayers