Sometimes he says he has Parkinsons, sometimes he doesn't. He refuses to follow up with doctors. He has been hospitalized with blood clots twice in the last year. He also denies the blood clots, most recent stay he said it was dehydration. Doctors say he almost died. In the past, he had allowed me to help with his meds. He won't let me now. He will post strange things on Facebook and send texts that are worded poorly when he gets angry about something. His sisters think I can control his… read more
Thank you both so much. My husband surprised me last week, he said he called Penn and Jefferson. It turned out we could get an appt at Penn for next week. He still won't let me go and he is going with the intention of fighting the diagnosis, which is fine with me, I'm hoping he gets a doctor that can get through to him. Right now, I feel just trying to support him, and being careful what suggestions I give him, is the best I can do right now. Having his sister challenge us seems to get him to want to prove to her that he is in control.
Robert-It has taken me a while, but yes, your thoughts are the path I am taking right now.
Self-acceptance plays a vital role. Eventually the disease takes over. It did with me. Although, I knew I had PD before the Neurologist officially diagnosed me. My wife was my biggest critic, but that didn't mean I love her any less. God has a unique way of letting us know when something is wrong with us.
Oh boy, and I think I have problems!I am the one who has PD,but my husband has Multiple Myloma.The drugs have killed his memory but he is not angry or hard to deal with.It is like having a placid four year old.
Best of luck to you!
Thank you so much. He won't go to his doctors! He will agree with medical people at the hospital and then not go. Our daughter went to the doctor with him at the beginning. Now he will not allow anyone to accompany him, he does not trust us. I don't have conflicts with him anymore, because it just upsets him.Believe me, it took a few years of reading and seminars to understand only a portion of what he is going through. Thank you again for responding.
Wow, you poor thing . You may have to take his sister to his doctor visits with you. Or maybe let them take him. They need to hear first hand what you are going thru. I had some issues , at first, with my husbands daughters, but they've come around. Being the caretaker is hard. Can you get the girls to relieve you for some time for you? Hope things improve for you.