Non Motor Symptoms Suddenly Worsen While Traveling | MyParkinsonsTeam

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Non Motor Symptoms Suddenly Worsen While Traveling
A MyParkinsonsTeam Member asked a question 💭

Anybody have strange non-movement issues flair up for a week or two and then go away
On our trip My meds worked on the movement disorder fine but suddenly the non-motor issues were not responding to meds.

I went on the trip of a lifetime with my spouse this month, and it turned into a major disaster. I ruined months of planning, years of dreams and broke her heart.

The Med background:
Rytary 3 times a day (9a, noon, 3p)
Requip in the morning (9a)
Azelict in the morning (9a)

53 years old… read more

posted October 3, 2016 (edited)
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A MyParkinsonsTeam Member

" I ruined ". NO you didn't ruin. Yeah a bunch of ugly stuff happened. I have to constantly remember the PD is universal in my life. My emotions. My thought processes. My spirit. My relationships. ALL have PD. I'm not saying that I don't have to be responsible for how I think feel and act. I am saying that there is a tyrant always striving to be in charge. Every thing that happens isn't because " I have PD " but that is a reality that I have to acknowledge. Not an excuse not a reason but yes a fact. I'm sorry about your trip and the pain between you and your wife. Both of you have something ugly living under your roof. Be generous with each other but remember " a reason isn't an excuse"

posted October 14, 2016
A MyParkinsonsTeam Member

I think anything that can stress you out or cause too much excitement can impact Parkinson's. The long flight, lack of sleep, off your normal schedule, any or all of those things would have driven me over the edge. I feel bad for your wife. When I'm out of sorts , I always apologize to my husband and tell him I don't mean to be this way but sometimes the deamon takes over!

posted October 3, 2016
A MyParkinsonsTeam Member

Have a wonderful trip. It's very beautiful.

posted January 28, 2018
A MyParkinsonsTeam Member

I am going on a trip to the south of France in March. Hoping for the best.

posted January 13, 2018
A MyParkinsonsTeam Member

I just got back from a trip with a 3 hour time difference. I got confused with the meds, when to take or did I take. I was also, trying a new medication. I hadn't seen my son in almost a year but I missed time with him because I would tell them to go without me while I fell apart in the hotel room. For me it was the time change and new meds.

posted October 22, 2016

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