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For those of you who have had or recommended Botox injections for curling toes, I'm wondering who administers them - your MDS/neurologist, a podiatrist, or a primary care doctor? Also, is it generally covered by your insurance carrier or Medicare provider, or is it an out-of-pocket expense? If out-of-pocket - what is the cost? Are you happy with the results? Any adverse reactions? Thanks.
@A MyParkinsonsTeam Member I was given a small dose in early July for left leg and arm dystonia. Worked for 6 weeks. Wonderful. I could feel it wear off. It was administered in my shins by my movement specialist. It is expensive and had to be preapproved by my insurance. I am getting a much larger dose Nov. 17th. My dystonia causes my left foot to turn in and I catch my right heel when I walk. When I got the last shot I could almost see my foot straighten out. Constant soreness was gone. My doctor used a sensor machine of some sort to make sure he administered the Botox in the best area. Didn't even hurt and I can be a real sissy girl when it comes to needles! They have had to wait this long (recommended wait is 3 months) as I just had DBS surgery. Worked for me!
My botox shots were for dystonia spasms in my shoulder and left arm. They were incredibly painful and didn't work for me at all! Pam
Prior to correct diagnosis I had two surgeries for curling toes. Finally both Achilles ruptured. Very painful. Worse part was that they pinned my toes. I would never go through that again. Botox for me!
Thank you, @A MyParkinsonsTeam Member
@A MyParkinsonsTeam Member
I have my Botox done at Beth Israel Boston . He is a specialist just for Parkinson's . It worked wonderful for me . I have mass health and they cover it and there's no co-pays. Good luck
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