Normal
I definitely think you should consider DBS, I had it done, even though it's principally aimed at calming tremors and other motor symptoms (which I don't experience much). A year and a half ago I… read more
Sorry so long to answer. I can give you some things to check for but you've probably done them. Is it worse when laying down.? Are you drinking enough fluid? Can you manage hard candy? Lemon drops… read more
I was told it could be a "flare", but the PD Foundation claims that "flares" are a myth. My Dad went through a hospitalization with CAT scan, EEG, MRI, LP to r/o encephalitis. They didn't find any brain diseases or vitamin deficiencies. The only thing I could think of was a TIA that didn't show up on the MRI. The sudden onset really has me puzzled. We had 4 neurologists look at Dad with very little info. to give us. Any suggestions?
Thank you in advance, Tedi
I had a stroke just before last Christmas; that one showed up; the 2nd one didn’t but it was diagnosed based on symptoms.
One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more
Possibly. Not som
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One of our members brought this subject of Lyme Disease compared to Parkinson's to my attention and I found it fascinating. I'm sure he won't mind my sharing this. Sterling
@A MyParkinsonsTeam Member, @A MyParkinsonsTeam Member, your so insightful Thank you for your comments
I have been tested for both of your suggestions and I had forgotten about them , so well done… read more
Since i found out i have parkinsons i found myself isolating myself from family and friends. Its hard being with a group of my friends most just turning forty like myself. I see them watching me when we're trying to have dinner and my hand is shaking so bad i can barely get the food to my mouth. I don't want their pity. We go to the movies and we have to sit in special seats because i can't climb the stairs and have to walk with a walker. I wonder if anyone else struggles with these feelings… read more
Adapting is a process along with acceptance. It is a new life style.
Yes,my wife was diagnosed with Essential tremors and treated for same for two years. I asked for a second opinion...PD was confirmed in ten minutes....then two years later told not PD but… read more
Libido has taken a leave of absence.
CarolCominsky,
Thanks for the hug. So nice to get and sending hugs back at ya. Hope you are having a good day today. Take care, BFN!❤️🤗😊
No, having a diagnosis was better than having no answers. Treatment provided years of better days.