Have You Suspected You Had PD Before Getting Your Diagnosis ? | MyParkinsonsTeam

Connect with others who understand.

sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Have You Suspected You Had PD Before Getting Your Diagnosis ?
A MyParkinsonsTeam Member asked a question đź’­

I never imagined I had PD before getting my diagnosis.I knew I had a disease, but I didn't know which one.When my MDS told me that I had PD, I was completely shocked,overwhelmed.That was 5 years ago ; I had no knowledge about PD.I was misinformed like everybody else in the population.I thought Parkinson's only affected " old people "After my diagnosis, I did a lot of reasearch and I concluded that PD was in fact the disease I've been suffering since my late teens early 20s

posted January 18, 2017 (edited)
•
View reactions
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member what's PLS ?

posted January 21, 2017
A MyParkinsonsTeam Member

Same

posted March 9, 2017
A MyParkinsonsTeam Member

Yes, but I did not want it to be true. But it was.

posted January 31, 2017
A MyParkinsonsTeam Member

Didn't really think about it. Wife was concerned bout my getting slow cognitively and falling asleep doing sudoku puzzles. Went to neurologist and started getting treated for tremors which I had had for umpteen years. After a year or so of treatment without much relief decided to go for DBS for the tremors. Between the neurosurgeon and MDS trying to rule out PD, I finally showed all three of four clinical criteria - tremors, rigidity, gait, I think. By then I was an "old person". After 5 years of PD diagnosis and DBS implants, I'm a new man - getting better all the time!

posted January 18, 2017
A MyParkinsonsTeam Member

I was originally diagnosed with PLS. The diagnosis changed to PD after two years.

posted January 21, 2017

Related content

View All
I Have Developed Droop Neck I Do Neck Exercise But Little Improvement I Have Very Short Walking Distance. I Am 77 And Have 13 Years Diagnos
A MyParkinsonsTeam Member asked a question đź’­
Anyone Play A Musical Instrument Before Your Parkinson’s Diagnois? Do You Still Play? How Has Parkinson’s Affected Your Ability To Play?
A MyParkinsonsTeam Member asked a question đź’­
Has Parkinson's Affected Your Sex Life?
A MyParkinsonsTeam Member asked a question đź’­
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in