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Have You Suspected You Had PD Before Getting Your Diagnosis ?

Have You Suspected You Had PD Before Getting Your Diagnosis ?

I never imagined I had PD before getting my diagnosis.I knew I had a disease, but I didn't know which one.When my MDS told me that I had PD, I was completely shocked,overwhelmed.That was 5 years ago ; I had no knowledge about PD.I was misinformed like everybody else in the population.I thought Parkinson's only affected " old people "After my diagnosis, I did a lot of reasearch and I concluded that PD was in fact the disease I've been suffering since my… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member what's PLS ?

posted over 3 years ago
A MyParkinsonsTeam Member said:

Same

posted over 3 years ago
A MyParkinsonsTeam Member said:

Yes, but I did not want it to be true. But it was.

posted over 3 years ago
A MyParkinsonsTeam Member said:

Didn't really think about it. Wife was concerned bout my getting slow cognitively and falling asleep doing sudoku puzzles. Went to neurologist and started getting treated for tremors which I had had for umpteen years. After a year or so of treatment without much relief decided to go for DBS for the tremors. Between the neurosurgeon and MDS trying to rule out PD, I finally showed all three of four clinical criteria - tremors, rigidity, gait, I think. By then I was an "old person". After 5 years of PD diagnosis and DBS implants, I'm a new man - getting better all the time!

posted over 3 years ago
A MyParkinsonsTeam Member said:

I was originally diagnosed with PLS. The diagnosis changed to PD after two years.

posted over 3 years ago
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