Agitation And Anxiety In PD Patient With Added Dementia. | MyParkinsonsTeam

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Agitation And Anxiety In PD Patient With Added Dementia.
A MyParkinsonsTeam Member asked a question 💭

Anyone else out there experience this with their loved one with PD? We are going back to the doctor next week but in the meantime Roy's time of agitation and anxiety has increased. They call this sundowners but Roy's starts around lunchtime and can go on for several hours. It also may occur again in the evening. He is on Seroquel which I was giving at bedtime but I now try it in mid afternoon. He also takes a Xanax occasionally. I have tried turning on the TV, turning on music, etc. but… read more

posted April 16, 2017
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A MyParkinsonsTeam Member

Hi @A MyParkinsonsTeam Member!! This sounds like my Mother! I am so sorry that you guys are going through this. My Mom started acting all sorts of strange this summer and I do believe it was a mixture of changed in her Seroquel and other pysch med changes. My mom also gets like this where she can't sit still. Kind of trips you out when they can't walk and now all of sudden they are up down up down up down and then again. What I have found to help my Mom is to take her to a bedroom with a fan and try to quiet her down. Asking questions, music, trying to get her to talk does NOT help her at all. Instead talk VERY slow, low, and CALM like. I get her to close her eyes and concentrate on her breathing slowlyyyy in and out trance like your voice. Maybe even try like a youtube video or something that helps you to fall asleep or meditate. This is the only thing I have found to help if I can't get her to calm down then it usually leads into a full blown episode BUT if we pay attention and take action ASAP sometimes I can get her to calm down and close her eyes to fall asleep for a bit before she goes into a full blown episode. Hope this helps!

posted April 18, 2017
A MyParkinsonsTeam Member

My father has been going through a very similar thing but has delusions/hallucinations as well. He was diagnosed in 2006 as well. My mother is his full time care taker and he just came back from a 3 month rehab nursing home stint. The reason he ended up there is because the Dr gave him a just approved new medication for Hallucinations/vivid dreams called NuPlacid. My father lost all sense of reality 2 days after taking this and became aggressive he ended up in the hospital and then re-hab center for 2 1/2 months. I feel your pain be careful and keep yourself safe. He is now back home and my mom thought she could handle him at home again but I'm not so sure yet that she can. You might consider and ask your Dr about CBD strain cannibis (this is the non-pyscho active cannibis which helps with movement disorders) or regular medical cannibis if you live in a legal state. Many Drs have no knowledge of this yet ours doesn't. It seems to be helping a lot of people with sleep and anxiety issues. I feel if it helps them be comfortable why not try it. I mean the big pharma drugs have so many terrible side effects and our poor loved ones have so few choices. My dad can't even try it because it is still illegal where they live. It's really about comfort now since there is no way to stop the progression.

posted April 17, 2017
A MyParkinsonsTeam Member

I just read that dimentia may include dillusions, hyperactivity, weakness, agitation, agressiveness and times during a day. So what is the problem? PD? or Dimentia? Seems like my husband is caught in the middle of both at the end of the day. PD is very related to falling? I know it's not necessarily a matter of balance.

posted May 2, 2017
A MyParkinsonsTeam Member

This sounds like my mother as well. It is much more likely to trigger right before she is due for her does of Sinemet....almost like clockwork 15-5 min before dose time. Definitely much worse at the 4pm and 7pm dose times. She gets very agitated and wants to go back and forth from one room to the other becoming increasingly upset. Sometimes you can 'talk her down' but other times it dissolves into outbursts of anger, crying, heightened confusion, and what I best describe as a breakdown. I have yet to find a good way to help my mom with this, and I find I am less and less able to deal with it myself. My mom lives in a facility but I really can't bring myself to just walk away when she is in that state. I often leave for the evening in tears and exhausted. I seems like there should be some medical answer, but more and more I am giving up hope of that being true.

posted April 2, 2018
A MyParkinsonsTeam Member

As time goes on I find that I need to leave my husband alone (but watch him) and encourage him to take a nap. He is always better after a sound sleep. Unfortunately this is the exact time he fights sleep. Books on CD help him nap. Problem is that I'm terrified he will hurt himself and hover too much.

posted May 28, 2017

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