Was, Or Is, It Difficult For You To Admit And Tell Others That You Have Parkinson's Disease? | MyParkinsonsTeam

Connect with others who understand.

sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Was, Or Is, It Difficult For You To Admit And Tell Others That You Have Parkinson's Disease?
A MyParkinsonsTeam Member asked a question 💭

I held back for a couple of days. Then the first person I told was my daughter. I had mentioned the possibility of having PD weeks earlier. We were both ok when I told her that the diagnosis was confirmed. When I told my husband he went into a deep denial and actually said, "You do not have Parkinson's disease so don't start pretending that you do". Then he left the house. Returned a hour or so later and said nothing about my diagnosis for several weeks. Then suddenly he got it. He started… read more

posted July 13, 2017
View reactions
A MyParkinsonsTeam Member

I have no qualms about telling people I have PD. Somehow they seem to take their cues from me. I'm ok so they are too. I don't expect anyone who doesn't have it to understand. You don't really "get" any life experience until you've been there yourself whether it's complicated or mundane.

posted July 14, 2017
A MyParkinsonsTeam Member

I I new something was wrong so when I was diagnosed with P.D n it was almost a relief to know what it was
I didn't tell anyone fdays while we try to get a head around the diagnosis
Telling our parents with one of the worst things to do
I found as time went on I found it harder and harder to tell people left that to my husband As time went on I began to bury my head in the sand know that but my husband continue to look into the research and read many many newspaper articles .

posted July 20, 2017
A MyParkinsonsTeam Member

My husband knew right away since he went to doctor appointments with me. And I told my son the next time I saw him. My sisters also know. I have accepted that I have PD but I don't feel it's necessary to let everyone know. If I'm asked about it, I'm happy to talk about it and answer questions. The people who are important to me are aware and that's all that matters.

posted July 19, 2017
A MyParkinsonsTeam Member

When I was diagnosed 13 yrs. ago, my husband was in denial. He actually yelled at me to stop shaking (tremors). I got him a few books on the subject & he finally came around after reading about it. Now, he's more than happy to help me & has come to terms with me not being "perfect" anymore.

posted July 17, 2017
A MyParkinsonsTeam Member

Since I am starting my PARKINSONS - MY SUPER POWER face book pagehttps://www.facebook.com/Parkinsons-My-Super-Po.... Thought i would review when Sue and I found out that Parkinsons had entered our lives. I have been reading lately how some people were reluctant to tell their family and friends, I guess you could say I wasn't that way. Hoping that my new Page will get new Parkinsons people a little more comfortable with what has come their way. Below is how i informed people i knew. May 28/2012

Ian Robertson
May 28, 2012 ·

Shaken not stirred

This may not be the best way to announce it, but it gets the news out to a lot of you.

May has usually been kind to Susan Laderoute Robertson and I. We got married in it , we had a daughter born in it.

Well we have been introduced to something new this May.

Last Wednesday May 25,2012, I was diagnosed with Parkinson’s.

So if and when we meet again, do not think that I am shaking because of a disease, it is because I am just SO excited to see you!

Sue and I have always been open to each other and felt that we should not treat our family and friends any different.

Having had my sister pass away with Ovarian cancer(even though I do not have any Ovaries), I am definitely better off than those with that cursed disease.

If the future presents us with as many great things that we have seen and done in our past

Then this is a future I look forward to, disease or no disease.

PS: As of now a couple of beers seems to help. Can there be any better type of medicine!

posted July 15, 2017

Related content

View All
How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
In 3 Mos.my Husbands Neurologist Went From Saying He Was First Steps Of PD To Dementia. This Is In Form Of A Question?
A MyParkinsonsTeam Member asked a question 💭
The Doctor Diagnosed My Husband With Parkinsonism? Does Anyone Else Have That?
A MyParkinsonsTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in