I just heard back from my doctor I am so happy ,Our next appointment is going to be testing for DBS. Have to go to the appointment without being medicated so they can video tape me and then medicate me after and redo the testing . IMay finally get the treatment I need
For those of you who had DBS or are getting DBS what are the questions that I should be asking or what would you wish you would have asked ?
I made a video and sent it to her to show her the dyskinesia that was going on , so I… read more
Most battery replacement is 5 years and they just reopen scar where battery sits disconnect old one an reconnect new one. There also now a 25 year rechargeable battery on the market which recharges every night with a Bluetooth type connection takes 30 minutes but at the moment in the NHS feels the 5 year battery is more reliable that's what I had xxx
Don't worry about process that wouldn't help you will be exhausted so go well prepared if possible and start practicing now by doing memory games or make up a sentence and repeat it the following day. Or start at 100 and keep deducting 7. Good luck I had DBS 1yr ago well worth it.
One thing you will need to decide with DBS is the location of the implant: i.e., STN or Gpi. STN is a smaller physical space than Gpi, which will mean lower voltages and thus longer battery life. In my case (GPi), the battery lasts only about 20-22 months (I have to run it at close to 5 Volts to get good benefit from the system))- I´m on my 3rd one since Dec 2012. They tell you that it lasts 3-5 years, but that must only be for STN implants.
There are other, possibly more important considerations of what location to choose - I´m just raising battery life as a consideration as it will determie the frequency of the replacement surgery.
DBS has made a huge difference in my life, and I hope you find the same.
@A MyParkinsonsTeam Member
Am glad you are talking @A MyParkinsonsTeam Member she is close in aģe with you and has had the surgery that you may have..Am sure oñce you have it done your quality of life will improve greatly Take Care God Bless Hugs 😃😃😃😃
Dbs is the most effective way to control distonia sine my surgery not one attack and I could guarantee you I would have at least two per day minimum. It's also great with stiff painful joints and tremors. That's the three targeted with me xx