What is dosage of the medicine. We were going to one doc and had him up to 12 a day. Went to another and she said it was too much. We tried to cut it back but really noticed a movement change.
Tried 9 and 10 and finally put him back to 12 and notice a difference.
We are now dealing with severe Hallucinations. On NuPlazid, but they say it takes 6 weeks to 3 months to notice the affects.
It seems to be a balancing act with the meds-too little of one and the motor symptoms get worse; too much of the other and the hallucinations/delusions get worse. Sometimes I feel like we have to "choose your poison".
@A MyParkinsonsTeam Member
I have not ever seen justification for decreasing Parkinson meds or limiting them for that matter.
I have been taking 20 Rytary (carbidopa48.75/levodopa195) every day and see no side effects.
@A MyParkinsonsTeam Member
Quite the coincidence, I just turned 70 and had DBS surgery least August. The procedure has undergone substantial changes lately:
One operation instead of two (left then right side) They have done enough to feel comfortable combining them.
Done under anesthesia now. Patient was required to be awake for feedback no longer necessary.
They have become so adept that I went in on day one and was home for lunch on day two. Surprised me!
Good luck and worry not.
I have also had PD for 7 yrs. I take 5 - 6 a day. About every 2 hrs and to prolong my dose in the afternoon I take a tincture of medical marijuana. I took Azilect, requip xl, mirapex in the past and the side effects affected my quality of life. Just had my neurologist appt last week and we have decided to proceed to see if I am a candidate for DBS since I am 70 and this could give me 10 good yrs. Blessings!
everyone is different ...you can't compare. I have had PD for about 10 years and take 6 c/L pills a day that are 25/100 strength, dosage 1mg. But I also take azilect, ropinirole, clonazapam, sertraline, entrcapone, and amantadine. But it works...so I'm glad they are available.
What strength?