I Am The Caregiver, My Wife Sleeps A Great Deal Of The Time During The Day. Is This Part Of Having Parkinson's | MyParkinsonsTeam

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I Am The Caregiver, My Wife Sleeps A Great Deal Of The Time During The Day. Is This Part Of Having Parkinson's
A MyParkinsonsTeam Member asked a question 💭

There isn't much to say about my wife's sleeping. She is having difficulty sleeping at night. She stays awake for two or three hours after she wakes up during the night. This probably is one of the reasons she sleeps so much during the day?

posted January 30, 2018
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A MyParkinsonsTeam Member

Exercise helps! If she is able, encourage her to just take steps outside. I think our Support Group is really helpful. Nothing takes the place of this site and all the love and knowledge you can get by participating.-Sherwon

posted February 6, 2018
A MyParkinsonsTeam Member

I too have the same problem. Drives my wife crazy. Parkinson's can screw up your circadian rhythm so that you don't wake when you used to and you're not sleepy in the middle of the night. I can't get up until the mid morning and sleep during the day. Then at night I am awake until 2 or 3 AM. Dr. gave me provigel which helps keep me awake. I have found that a lot of people who have Pk. sleep only 5 or 6 hours a night. That's what I do. Also I have gotten hit with "sleep attacks" where I get very sleepy and tired quickly and just have to let it happen until I am over it---usually a half hour later. What you are experiencing isn't unusual and may not change. But it isn't dangerous. Just try to find your best way around it. Good luck. Namakagon.

posted February 4, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member
Fatigue is normal and resting/sleep do help. Also, in the afternoon, my husband's legs flail/dyskenesia and get trembly and weak. Resting helps. PD is a challenging journey. His neurologist prescribed meds for sleep, pain, restless leg syndrome to take at bedtime. Hugs and prayers

posted February 2, 2018
A MyParkinsonsTeam Member

@GARYWILLS - I sympathise with you both as I have been in both seats (when my father slept most of the day and was awake at odd hours due to his peripheral neuropathy and spinal stenosis) and we would have to tiptoe round the house and outings together became a challenge and because I have experienced that myself.

I am assuming she hasn't had her PD for long? Ideally, I am assuming that you would both like to synchronise your sleep/wake times more. There are so many reasons for little sleep:
anxiety, pain, spasms, too much caffeine or bright PC or games too close to sleeping time..also sleep apnoea.

If muscular or discomfort - see GP/physio and maybe try a relaxing bath/massage before bed. Perhaps even muscle relaxants or clonesopam (I was prescribed latter normally used to treat epilepsy - did not take but heard it is successful in treating those with violent, loud , aggressive dreams to help them go to sleep. Your pharmacist/dr will obviously know your history better to prescribe the right drugs.

In the moment/mindfulness activities help some people relax.. I liked to listen to restful music whilst painting -very absorbing. An absorbing project distracts me from my sometimes anxious thoughts.

posted January 30, 2018
A MyParkinsonsTeam Member

I have the same problem can be awake all night and then fall asleep in the armchair. I have a problem with restless leg syndrome too. This keeps me awake too. I think its all a parky thing

posted January 31, 2018

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