Lately the stress of the changes caused by PD has been creating a divide between my fiance and I. My depression and anxiety and lack of sleep gets the best of me more often than not. He has a very controling and abusive ex wife and the kids start to act the same way. We end up arguing and find it more difficult to find the simple joys we use to in each others company. If anyone has any ideas how to bring joy back to a relationship that is more complex due to PD? I will take all the advice I… read more
@A MyParkinsonsTeam Member first my husband did not want to talk about it and was very quite and stand offish when I would have a PD exacerbate, but has gotten much better as he has learned more about PD and has become so much help for me. was rough in the beginning but is so much better now.I could not do without him.
Hope, Faith and Love...and the greatest is Love. I find that it helps to sit and tell your fiance your feelings. It might be a good thing to explain to the other party, what PD is all about...if you don't have PD, it's difficult to understand what it is all about.
A lot of people think if they don't acknowledge it then it won't be an issue. I had this attitude from my husband up untill I was about to go into hospital for dbs surgery. I sat him down and told him straight I was on the verge of leaving him unless he started to support me and accept my diagnoses and the fact that I wouldn't just blindly go along with my Dr's treatment I know my own body so I have the right to choose and decide what is best for me. After all I have studied this to the best of my ability scoring 84% on the course test I took.
Even my specialist will listen to me. So if you want to remain my husband put up shut up listen to me and learn or I am off. Needless to say he does now.
My hsband of 50 years was diagnosed 2017. It is a really tough time. It takes time for both of you to to get over the shock and start to figure out this very tough disease if you ever do.. He was real quiet to start also but Now is talking more..🙏🏻