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Apokyn
A MyParkinsonsTeam Member asked a question πŸ’­

can this drug help with imbalance
or drewling

posted April 18, 2018
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A MyParkinsonsTeam Member

Hi Margie, I'm on the test study drug of Apomorphine Subcutaneous Pump. It is the same as the Apokyn but in a pump for advanced Parkinson's. I use it 24/7 and have amazing results! I have Parkinson's with dystonia (rigidity) and contortions. My pain level had become so high, that I fractured my foot and it felt bothersome but had no idea that it was broken. My daily pain had become worse. The pump has brought my dystonia and my pain down to 10-20% of what it was! I can move easier, balance, writing, voice volume, drooling, facial expression, swallowing, breathing deeper, cognitive, muscle tone, strength and all my symptoms have improved! I am now doing exercise classes, walking a mile, driving again on my good days, hiking in the mountains on short hikes, and generally working hard to reclaim what I had lost! I still look like I have PD but am so much improved! I go to UCD, Denver for the test study. They still need more volunteers. To help with the study, Call the UCD neurology. @A MyParkinsonsTeam Member Thank you for your great explanation!

posted April 19, 2018
A MyParkinsonsTeam Member

Karen Ba,Sorry things have been so difficult for you.I will be keeping you in my thoughts and prayers.. Warm hugs,Donna πŸ’žπŸ’žπŸ’žπŸ’ž

posted April 20, 2018
A MyParkinsonsTeam Member

Does apokyn help balance isues ? Yes, it could. Help control Drooling? Probably not. All the best Jud From the packaging: APOKYN is used by injection, as needed, to treat loss of control of body movements in people with advanced Parkinson's disease (PD). This condition is also called hypomobility or off episodes. An off episode may include symptoms such as muscle stiffness, slow movements, and difficulty starting movements. APOKYN may improve your ability to control your movements when it is used during an off episode. This may help you walk, talk, or move around easier. APOKYN is not used to prevent off episodes. APOKYN does not take the place of your other medicines for PD.

posted April 19, 2018
A MyParkinsonsTeam Member

Sending love,warm thought and lots of hugs and prayers your way dear friend.Hope you are having a decent day.,Love you,Donna 😊😊

posted April 21, 2018
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Thank you so much Donna! It has been hard at times, but it has made me stronger than I ever thought I could be! I've had PD for 42 yrs. now, so I am so thankful for all the help I receive. I have learned to keep pushing myself to gain back the abilities I've lost. But the true help is friends like you who take the time to leave a kind word! Thank you! hugs, Karen

posted April 20, 2018

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