OK, you didn't list those other things before. I'm sure you do have pd if they both think so. I had never heard of it being painful before. When I first was diagnosed with it I was shuffling, my alarms didn't swing while I walked, my writing was very small, and I did have some tremors. I'm at the stage now, nine years later, where with the medication I take I don't have much for tremors at all but I do have that freeze up of the leg that drives me nuts. Sometimes it's not there at all and then sometimes it comes out of nowhere very different amounts of time. I go back to the neurologist on the 30th after six months and we will talk about it and reevaluate my meds. I'm sorry you have pain with yours. I take my Carbidopa/levodopa every three hours, so I set my alarm on my cell phone to make sure I take it on time. It seems to matter to me that it be taken on a tight schedule while I'm awake. I also take Pramipexole. They seem to work very well together so far. Most everybody is surprise that I have PD when they meet me because I don't show signs of it except in my legs. By the way, I also have rheumatoid arthritis since about the same time I have PD. That is exceptionally under control also to the point where people wouldn't know I have that either. So I am a pretty lucky unlucky person for the most part. I have other issues, but those are the two main ones. Are your legs always in pain? What other symptoms do you have? I'm very interested in hearing more about you😎

I have progressed slowly over 30 years. My symptoms began as ridgiity, slowness of gait, anxiety and feeling depressed. I just simply lost that bounce in my step. Now I freeze when my meds aren’t working.

Snooks Some people say they have never heard of pain. Glad to hear there is pain Hope you know what I'm saying I'm not glad u have pain but it's nice to hear I'm not crazy.i guess everyone has different symptoms. Thank you for letting me know.

Thank you Cathy. Yes it seems to progress fast for me. I had symptoms for about 5 yrs and just diagnosed 2 mos. Ago. So testing out meds. I think neupro is doing good. I can actually write my name and can read it lol I haven't been able to write for a few yrs. And yes if it wasn't for Jesus I probably couldn't get through this he is my strength and comforter and I trust in him always I see that you're from Red Bluff I live in Redding

Hi, do you think it could be Parkinsonism, MSA for example? The parkinsonisms typically progress much faster and i find that i am always trying to get stable as i see others being stable for months or years. I've been diagnoised less than 3 years and am always progressing and adding, trying more medication. Last week i was told there is nothing new to try anymore...just keep upping the doses now. Good luck and inside you know what sounds true to you and your situation. Stay close to God...that is the most important thing you can do!