I often have festination when I walk, according to my PT. Actually have to stop and "re-set". Start tipping forward if momentum takes over. Use the loo more often, but then, always did drink a lot of… read more
My Husband would like to get a local private physical therapist or trainer that specializes in parkinsons. He would also like to know if there are any support groups that are available to talk to people that are experiencing what he is going through and maybe get recommendations for various things that could help with his parkinson. Please if anyone has and referrals let us know.
Thank you
Hi, I know LA is a big place but I would recommend contacting Reactive PT. They are in the LA area and are excellent parkinson's therapists and if not close should be able to recommend someone near… read more
I am alone and very lonely. I wish I could put myself up for adoption! I have virtually no family (a couple of distant cousins). I am 71 years old. Not close to being under the ground. I have friends but they all have families and busy lives that do not include me. As most of you know when you have an illness like Parkinson’s you lose some friends (or acquaintances). I am very blessed with my health issues. I experience tremors only. I still drive, take care of myself and live alone… read more
Rock Steady Boxing for Parkinson's meet there men and women .When I started going made some nice friends there all of us have Parkinson's good starting point. You do not have to tell anyone you have… read more
My ex-husband’s PD is definitely progressing and, at least to me, at a rapid pace. His blood pressure is the biggest problem and after trying many meds, nothing seems to work. Now he tells me that he’s having balance problems not related to blood pressure. He knows he’s going to fall so stays on carpeted surfaces. He’s losing weight because he stays out of the kitchen because it isn’t carpeted.
Have any of you had any luck with Medicaid? If so, what help? How did you navigate the system… read more
Sorry, I can’t help with Medicaid but you can purchase a soft helmet on Amazon for under $35 so your husband can visit the kitchen again. I saved my head several times with one. Falls are going to… read more
I’ve got an additional problem getting my food on the utensils and into my mouth-my skull and neck are fused together so I can never again turn my head in any direction. But I have to believe there’s got to be a way to get it on and to my mouth. My hand tremors are, in my opinion, quite advanced. Thanks everyone.
Try a spork ( spoon fork combo) really helps and is same as regular fork in weight and handle
I care for my husband who has Parkinson's and was wondering if there is a support group for caretakers?
Check the local Parkinson's organizations in your area by going to the Parkinson's Foundation or Michael J Fox Foundation websites. Also, you local hospitals are likely to have support groups.
I started to put the French Parkinson's site on there then I went to raya's homepage and it says Francesville, Indiana, USA but maybe that is not accurate
Other than a doctor, or church, is there any local groups that walk daily and keep each other moving?
I found that a Facebook page [Service Dogs for Invisible Disabilities] helps me.
I'm interested in trying but can find no current references on its therapeutic benefit for exercising? There is no local PD PT team in my area and I thought this could be a good alternative. The PD Warrior program looks interesting but is rather pricey.
I started a program called Power for Parkinson’s. It is online. They have online daily classes or if you miss that they put them on YouTube. I really like this program. .