Is There A Need For A Separate Oranisation Helping Those Who Self Care PD | MyParkinsonsTeam

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Is There A Need For A Separate Oranisation Helping Those Who Self Care PD
A MyParkinsonsTeam Member asked a question đź’­

The needs of the carer and suffered seem the same but also different. As a newly diagnosed PD sufferer with no carer I find that most articles are about how the carer could help the sufferer. I feel i need more self help advice.
PS My PD was only diagnosed 10 months ago but has been alarming in the speed of its progression. (I now can not walk without a high dose of medication. )

posted June 16, 2018
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A MyParkinsonsTeam Member

All very good advice, you don't want to isolate yourself from people and also you do need to keep active, not only in body, but in mind by reading, crosswords, word searches or anything that makes the brain work and keeps your mind off the diagnosis, I found keeping active in both makes me feel much better. If I sit too long or don't have other things to think about I feel so much worse in myself being much stiffer allowing less movement and also getting depressed and feeling sorry for myself and the family.

posted June 18, 2018
A MyParkinsonsTeam Member

I know how you feel. I was diagnosed as a single 63 yr old. I would suggest that you enroll in PD exercise classes. Seek out others that can be an encouragement to you. Talk to a therapist, sign up for physical therapy. I am my own advocate and it is possible to live well. You need to exercise everyday! (Even if it is a walk around the block.) It was my best medicine and lifted my mood. it will get you farther than upping your meds.. Don't isolate!! Find a PD buddy to talk to, meet for coffee, etc. You can do it -

posted June 17, 2018
A MyParkinsonsTeam Member

Karentb has good suggestions. There's also a Facebook group for people who are living alone with PD - https://www.facebook.com/groups/alonewithparkin...

posted June 18, 2018
A MyParkinsonsTeam Member

Good advice.

posted June 24, 2018
A MyParkinsonsTeam Member

My husband says the same. I often wonder if it’s the PD or just getting older. No fun is it?

posted June 23, 2018

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