I Was diagnosed 11 years ago and my symtoms have always been a poor sense of balance, fatigue and my voice is bad. Today i still have the same symtoms but i now take 4 medications instead of the two i started out with and i don't feel any difference. Should i tell my neuro about this and whats a good way to approach her with it. Thanks in advance for all of your support with this issue. I was started with cardalopa levadops and azilect. Now i take thoset two plus amantadine and… read more
I feel for you. When first diagnosed, all the doc wants to do is put you on L/dopa C/dopa(sinimet) and see you back in a month. Tried that, didn't like, along with other PD drugs. Like you, symptoms were light and manageable. Treated first five years holistically. Eating right, exercising, and lots supplements. When symptoms grew too much to bear, I finally gave in to taking Rytary. Basically L/dopa C/dopa only in a "time released" form. Works better for me, as it slowly releases throughout the day, so not so much of an
"on-off" feeling. And I didn't get the sick feeling I got from the other form of L/dopa.
Hope that helps....Deb
When I was first diagnosed 3 years ago this month I was put on meds right away. They were increased each visit. Eventually I became very ill.... had trouble swallowing, threw up felt dizzy and my tongue was hard to move. I couldn’t eat and lost 20ibs. I really felt sick. I started going to a very good neurologist who was a movement disorder specialist. I’m on 1/2 of the meds now and I feel normal again. I’m taking 25/100 carb-lev 4 times a day and ropinerole 1mg 2x a day... no more Azelect
The first neurologist I had had me taking too much of the semenex movement specialist reduced my medication and I've noticed a big difference
I have found that the med situation is always in flux. PD is always unpredictable, new meds are developed, and that learning curve about PD, symptoms, side effects, etc. remains extreme...I take an active part in managing my treatment and adressing this ongoing problem. We need to learn and we can all contribute to that.
I'm only using Azilect. Every other medication my doctor has added has given me such awful side effects. I'd rather deal with my current symptoms now than the nausea, headaches, fatigue, rashes, etc that make me bedridden. Don't know what I will do when my Parkinsons gets worse later on.