My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?

My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.

I live in the 93012 area and have not as yet found a Doctor versed in this aspect of Parkinsons. They are not fluent in understanding the interactive issues with RX and the potential results which can happen when wrong. Note: Movement disorder specialized doctors, so far I have found, are not versed in GI complications.

My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more

One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more

My mom was diagnosed with parkinson's without the tremors 5 years ago. At a recent neurologist appt., the doctor said that it's not the typical Parkinson's but rather Parkinson Plus with Lewy Body. (She's rapidly losing motor abilities which was the reason for the new diagnosis.) This was the first I've ever heard of the "plus". Anyone else hear of this? Thanks.