Caregiver Help- Being Pushed Away | MyParkinsonsTeam

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Caregiver Help- Being Pushed Away
A MyParkinsonsTeam Member asked a question 💭

I have been dating my boyfriend with PD for 5 months and I’ve been very attentive. I’ve noticed his anxiety level rising when either he is traveling or I am. I was in annual meetings this week and while interacting with a male colleague who I have no history with other then work related, my boyfriend has decided to break up with me over it.

Are his actions anxiety related? My boyfriend is a VP at his company and is, I will admit, very demanding with respect to being able to get ahold of me via… read more

posted March 8, 2019
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A MyParkinsonsTeam Member

Jewel said it great, I'll just add that it sounds like he has done very well. I'm wondering if he is reluctant to tell his neurologist an honest picture of his symptoms. For me, it was like I knew as soon as I acknowledged my symptoms were causing a problem, they became real. It will be a delicate time for you two.... I will pray for both of you. Lastly, exercise. I say that because I know how critical it is; yet I haven't been for the past six or seven months and I am suffering the consequences. I am filling out papers to start a new program Monday. I DO NOT WANT TO, but I am.

posted March 9, 2019
A MyParkinsonsTeam Member

By your picture I'm guessing you are not HS sweethearts. So, if he's been able to climb to a role of VP in a company he's grown used to having things under his control in a manageable way for some time. PD brakes that mode and all of a sudden he's noticing many important areas in his life are no longer under his control. He tries one thing and gets no response from the effort, or gets an unwanted response from his efforts. As a consequence is normal that he'll try to doubt many things in his life that he was counting on being a certain way. When doubt and uncertainty slips in, fear follows.
Is he taking anti-depressants? If he's not it may NOT be a good idea for you to suggest he should. Do you have access to his Dr.? That might be the way to go.
You may also want to consider counseling, with a counselor suggested by your boyfriend's Dr. First counseling just for you so you understand better PD and a life with PD. Then, perhaps, counseling for the two of you.

posted March 19, 2019
A MyParkinsonsTeam Member

I take trazadone at night but an hour before bedtime not at bedtime

posted March 8, 2019
A MyParkinsonsTeam Member

He should be happy to have you it’s hard to find I am partner when they know you have PD I think maybe he’s worried someday you will leave him he probably needs reassurance of your love . Some days I feel sorry for myself and wonder why me and other days I feel fine I think it has to do a lot with whether you’re having a good or bad day with PD good luck with Your situation hope I helped

posted March 14, 2019
A MyParkinsonsTeam Member

I want to reiterate how important is to listen @A MyParkinsonsTeam Member and work with doc to slowly wean. Google DAWS (Dopamine Agonist Withdraw Syndome).

posted March 13, 2019

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