My children are adults as well. We had to have a sit-down to discuss the realities of Parkinsons and that their help is needed. My kids looked at my husband like he was invincible and we had to make them face facts. And I had to let them know that I needed their help too with taking care of him. The talk worked.

@A MyParkinsonsTeam Member - Yes, that is probably for the best. He may start to ask questions if you do that or he may continue to ignore the whole situation until your condition worsens to the point he can't ignore. I know it's hurtful for you. Even though my Dad and I both have PD, my family does not talk alot about it. And if we do, it is usually in reference to my Dad who is worse. We know what he needs help with and we just do it. But the acknowledgment that it is real is important. I hope he comes around sooner than later. God Bless.

Mentioned Users

A MyParki...

I think loved ones are like ostriches, hiding their heads in the sand, denying the truth until the end stages start. But I think I know why. Who wants to picture their loved one as being the same as other people they see with PD? By doing so, they waste the best years left in our lives with arguments and bitterness. I gave a one page printout to my husband that seemed to change his attitude. I don't know if he still has it. Being retired and with me 24/7 has helped. So have the kicks, hits and screams in the night from vivid dreams that I never had before. Plus cognitive and verbal problems with spoken but not written words, go figure! I pray the loved ones mentioned here will understand before it is too late. That would be tragic and sad for everyone. God bless us all.

If your family is having trouble understanding PD, you might consider having them read lots of posts on this site. It should not take long for them to understand what a hideous and frustrating disease we deal with.

CarolTran, I understand the loss of retirement plans. One year after I retired, I had a routine colonoscopy and was told I needed a bowel resection to remove a 2 in mass that had grown in the five years since my last colonoscopy. In all 12" of colon and one valve were removed. We had to pay the maximum out-of-pocket expenses that all but wiped out our emergency fund though thankfully not our personal retirement savings. But for three years I fretted and worried about our future finances. I wouldn't spend a penny more than needed. In 2018 I was diagnosed with PD. I decided enough! I had made our lives miserable for three years and now PD! In May we took a vacation to DE, only a 3 hr drive, but we had never been there before. My husband has macular degeneration and gave up driving at night over a year ago. I see shorter, less expensive trips than we had planned but that is okay. We may even do bus trips in the future but I won't deny us any longer. We will do what we are capable of now. This plan may have to be revised as our health worsens but I refuse to worry about that now. I refuse to make us miserable while we can still enjoy life to some extent.