My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
Parkinsonism is a large bucket of other / non Parkinson diagnoses. like MS, Huntingtons, etc. I used this as an opportunity to seek another opinion. Becoming a stronger self advocate.
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.
How did your neurologist differentiate between the 2? I know this isn't an entirely Parkinson's question, but I would like to know if anyone else has been told it might be MSA.
Susan, I am a story teller with a sense of humor even when I’m not feeling hood
I seem to not be able to control my anger as of late. I say too many things that can not be unsaid and have to constantly apologize, it's like my filter went away! What I say is always valid, but still hurtful. And then come the tears and sobs. Because I feel horrible for being an ass, then feel sorry for myself lol.
I feel that it all comes from pent up frustrations from just everyday bs, dropping things, forgetting things , another trip up the stairs, etc., etc.
Anyone else relate?
Wish I could John 4, but I have a shoulder that needs replacing and I am almost 87, so it is not recommended by my Parkinson doctor. Could possibly have some serious Parkinson issues, and the recover… read more
chest x rays are clear; gasping and wheezing. have an albuterol nebulizer that helps some--any body else have this or know what helps? Thanks feeling desperate
My Primary care prescribed Spiriva Respimat 1.25MCG. INH SPR. 2 puffs daily. I also use VENTOLIN. HFA. 90MCG Inhaler for shortness of breath and wheezing. I also use a CPap and keep a canned supply… read more
Thank you all for your answers. It answered a lot of my questions
My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more
Sandy, some injections are given in the calf and others in the feet