When I stand up, abs go into spasms pulling my chest forward and down. Back muscles are not strong enough for me to reach an erect posture. Then spasms of the diaphragm restrict my breathing. Immediate relief comes when I sit down. Maximum standing time is 3 minutes. I'm afraid if this can't be managed I'll be wheelchair bound very soon. I take Sinemet 50/200 twice a day. I began a trial of Cogentin this evening. I will be taking it twice a day. Is this a side effect of Sinemet? A symptom of… read more
Well said TeresaAnnBakerCarl I think a sense of humour and your personality helps a lot with Parkinson's. We have this Disease and there is nothing we can do except to go about doing things to help us live as best as we can. I go to an exercise class especially for people with Parkinson's and as well as exercising it is fun. Some of us might instead of using our right leg or left arm end up doing visa versa so we end up laughing. We also have a meeting once a month where we sometimes have a speaker telling us about the local history which is interesting. Also we take all sorts of things for a raffle which in itself causes amusement especially as sometimes the same table gets most of the raffle prizes, so they get teased. It also enables us to meet up with like minded people. I have only been living in Torquay Devon UK for the last three years and it was only since being here that I have joined in with our area group. I am pleased that I have.
Sharon
Thank you. Very helpful info.
PT has been ordered. Hopefully I'll be able to start this week. Thank you for the suggestions and thank you for caring. I'm leaning toward the Botox injection but I have to do more research on it.
I found out there is a name for all those symptoms: camptocormia
I’m 65 years old and have had PD for 20 years. I too have very bad dyskinesias. I Finally found a neurologist that said I have Sinemet toxicity. So I had to reduce my dosage. I now take 1 1/4 pills of 25/100 5xs daily. That means it’s a lower dose basically time released throughout the day. What helps my dyskinesias the most is CBD oil from Hemp plant. I take it whenever it seems like the dyskinesias are going to last more than 15 minutes. I take a pretty hefty dose of (130 mg of Hemp Oil). But it works. Since I’ve been taking Sinemet for almost 15 yrs, (7yrs longer than recommended), I’m grateful I found out about hemp oil so that I can continue to take the only medication that allows me to move. If I had to stop taking it, I would be rigid like a statue. (My wife does my typing for me)