I love to tell stories (as you can tell by my many posts!) I get really frustrated when I want to share a special story with my husband or my stepson and he interrupts me in mid sentence and starts talking about something totally unrelated to what I was talking to him about. Granted, my husband is nearly deaf in one ear and quite hard of hearing in the other and his son is Attention Deficit. When I let him know that I wasn't finished, he stops interrupting until I am finished, then goes right on with… read more
@A MyParkinsonsTeam Member, Your situation is all too familiar with PDers and care givers. I had both issues; my speech became too soft and my hearing about like your husbands. My wife would get frustrated because she couldn't hear me and I couldn't hear her. It made for some interesting conversation. I have had speech therapy and it helps my voice projection and clarity. The Speak Out program would probably help with your speech, or some other speech therapy. Sounds like your husband needs to see an audiologist and perhaps hearing aids, or like myself I learned to read lips.
Your husband also needs to know how, carrying on conversations you can't participate in makes you feel. If you ever needed his understanding, love and support expressed, it is now. I feel he is being the way he is, because he doesn't know enough about PD. It should be a family affair to learn all that can be learned about PD. Speech problems, in particular, need to be high priority because open communication between husband and wife are important before PD but now it becomes crucial.
Love & prayers for a positive, happy solution !!!
@A MyParkinsonsTeam Member - my husband and I are still newlyweds (2+ years). I find it helps us to get to know each other & helps our love grow to tell each other about our thoughts & experiences. I have only experienced 'conversational narcissism' once in my life when my previous husband, now deceased, gave his hour-long memorized living history presentation to my parents & I at the supper table at a restaurant when we were trying to have a group conversation & catch up on each other. It was iinconsiderate, rude, & domineering, but we were all polite to him and tried to hold our conversation around the edges of his monologue.
. Now he is gone, none of us regret extending him that kindness. Your mother will not be with you much longer. Enjoy her stories, even the reruns, while you still have them. There will come a time when you will long to hear them again.
I agree that the Speak Out and Loud Crowd is an excellent program to help maintain voice and swallowing. I didn't know until recently that our speaking muscles and swallowing muscles are the same--adding greater importance to my speech/voice exercises that I'm supposed to be doing daily. I certainly want to retain my speaking voice and I sure don't want to have a feeding tube! So, if you live in northwest Indiana or southwest Michigan, there is a Speak Out program available to you for FREE in Berrien Springs, Michigan on the campus of Andrews university.
@MyParkinsonsTeam users... – thank you all so much for being here, listening to me and my stories (I guess that is one of the attractive things about internet communication – no one Can interrupt), and for your kind, thoughtful and empathetic answers. I did find a positive, happy solution after all. Like Robert said, my husband needed to know how his actions make me feel. So, I sent him a Facebook message about it. He tried to call and to text me, but since he had inadvertently run off with my phone, I didn’t get them. So he came home and with lots of hugs and genuine caring, he talked to me about it and we both feel lots better. I am so lucky he wants to be such a good husband. It is to my advantage that he doesn’t know much about PD. We married 7 years after my diagnosis. His expectations of me being normal help me to be normal. Jewel, as usual you are a gem – I appreciate your suggestions for communicating with a husband with hearing issues, and yes, they are helpful. John Carl – I think we will come up with a code signal, too. That seems like such a good idea. Lesley – thank you for finding me to be special. I feel that way about you, too. Esther – it took me a while to get your joke… duh!
I often have that especially because with my pd my voice has become meek and weak sometimes I feel like I must rush to finish so I can get my story in so frustrating but do not let it get you we all here are listening to you and think ur special