Has anyone found neck or back supports helpful
After seeing this picture, I'm thinking of buying a neck pillow (type you use on an airplane) for my hubby.
My husband has atypical Parkinson's for the last 5 years. I recently saw youtube video from Dr. Gary Demerjian of a mouth piece that improves the gait and movement of Parkinsons patient. I became excited, called the office for an appointment. My husband is skeptical as we have to fly there in his clinic in California but has anyone tried this? I would like to hear more about it. Is there science behind a mouthpiece that can help improve movement,
The doctor's website does not mention Parkinson's at all. I would want to know the percentage of success that he has with Parkinson's patients, and where in professional journals he has reported on… read more
How do you explain Parkinson's to your friends and family? Do you think they understand?
I hid when I was diagnosed with Epilepsy. I told my husband I will not do that again. I told all my friends and family.
E, I noticed that your question and responses are from 2018. For what it is worth, WWP has been taking Greenforia Full Spectrum 1000mg CBD Tincture for 5 yrs. Greenforia is an online LLC that… read more
Of course we want to make each other smile. Here is the secret to my smile-
Each time you sit or lay down today, please flex your ankle. Just point your toe then relax. Do this with each foot and as many times as you can throughout the day.
Do Not Do This if it hurts or you feel unsafe.
Later while while you are sitting down, remember to make yourself as tall as possible and look forward, not down. Your toes are still there (lol). Hold this position as long as you can and repeat as often as… read more
Are you smiling now?
I prefer a real old fashioned book in hand. It gets my eyes off electronics and in my happy place. Just finished a fascinating book titled The Last Telegram about the silk industry and parachute… read more
I'm now taking a new prescription to control cramping and semi-paralysis.
Zanaflex is a very powerful muscle relaxant. But it doesn't return your bodily control to you- it just takes away...everything.
It helps you by doing the same thing the illness does.
But I now could not do without it.
That's the question I'm asking. When did you know how it is?
At some level I think I always knew this wasn't going away. I was still unprepared for how bad it gets, and I still think it's gonna get a lot worse. 😡
It's been there for a few days now but point as I might to every part of it, it doesn't seem to be active. I hope we can use it soon. Perhaps the Community Leaders could tell us more about it. I have so many ideas for challenges I've given myself that I would love to share with you and I'd love to participate in challenges posted by others
Hope this function becomes active soon. See you at the races!
Until it is functional, how about a little bitty challenge just among friends-
While sitting… read more
Try doing it to music - much more fun!
I am alone and very lonely. I wish I could put myself up for adoption! I have virtually no family (a couple of distant cousins). I am 71 years old. Not close to being under the ground. I have friends but they all have families and busy lives that do not include me. As most of you know when you have an illness like Parkinson’s you lose some friends (or acquaintances). I am very blessed with my health issues. I experience tremors only. I still drive, take care of myself and live alone… read more
Rock Steady Boxing for Parkinson's meet there men and women .When I started going made some nice friends there all of us have Parkinson's good starting point. You do not have to tell anyone you have… read more
There are ways to listen to the news also. Some podcasts offer news. Sorry I can’t provide specific sources at this time. Perhaps members can do some research on this.