Quick Links
Resources
About MyParkinsonsTeam
Powered By
Have been told she has meibomitis of eyes. She been on and off medication for many months. She got new eye glass for thousand dollars. I hope this help her out.
Here’s an article on eye problems:
How can I do a search to find people in my geographical area?
Thanks so much!
I have a regular battery now which I was told would last 3-5 years. I am on year two now and it is almost dead. It needs to be replaced. For those of you who have a rechargeable, how do you like it? Any problems? How much time do you have to take to recharge, every day, every week? And what if you go out and dont know if you need to recharge. Did you ever run out of battery? Are you always checking to see if you are fully recharged before you leave the house? Bean
I have a Boston Scientific Vercise with directional leads. I charge once a week for an hour or so. It has worked well for me. It was placed September of 2019. The battery is supposed to be good… read more
If you have had DBS surgery, is it something you would do again knowing what you know now?
Thank you so very much Patrick. Sorry to hear re: incision/scar placement and bumps of the caps used to cover the electrodes. Good to know. I agree ahead of time. I think these people see so many… read more
Has anyone purchased a Theracycle, I'm looking into one, although i'ts expensive, I've heard a couple good things about them. I have bad freezing and I'm told this would help. I appreciate your opinions.
Thank you,
Hal Cohen
Hal, I do many of the things other members of the community suggested but I also bought a refurbished OneStep recumbent buke and it helps strengthens my legs, helps renew muscle memory for alternating… read more
Does anyone who does not have tremors try DBS to improve your quality of life.
I don't shake but body is tight and rigid. Gate of walking is shortened as well as speed of walking. I'm considering DBS but uncertain it will help with my type of PD. Would love to find someone for advice.
Hubby had rigidity, less tremors. Meds were causing terrible dyskinesias, so he had DBS 2017. He reduced meds by at least 60%. It was a godsend. But time and other medical problems have progressed so… read more
A couple more thoughts on DBS. It helps to be close the hospital as there is a period after surgery during which the programmers do their magic. There are literally more than a million different… read more
From fusfoundation.org
Focused ultrasound is a noninvasive, therapeutic technology with the potential to improve the quality of life and decrease the cost of care for patients with Parkinson’s disease. This novel technology focuses beams of ultrasonic energy precisely and accurately on targets deep in the brain without damaging surrounding normal tissue.
How it Works
Where the beams converge, focused ultrasound produces a variety of therapeutic effects enabling Parkinson’s disease to be… read more
On January 31 at 12 Noon there's webinar on FUS on Zoom
I had DBS a year ago at Stanford Hospital. Originally the surgery was like a miracle after 15 years of advancing Parkinson's it was almost a return to normal. I was able to cut the Sinemet from 14 pills a day to 7. After the first adjustment I felt great. Each subsequent adjustment has not gone well. My neurologist moved away soon after my surgery and a nurse did the next 2 adjustments. The last 2 have been done by a neurologist who has spent a lot of time with me and seems to care about… read more
I had DBS surgery seven years ago, and had similar problems to yours. I have had a number of people doing adjustments to mine as well over the years, and I can't help but wonder if there isn't… read more
I am now in my 9th year of PD and am considering this surgery. I would love to hear of others' experiences with DBS surgery.
My doctors name is Brandon R Barton. They've been wonderful going back-and-forth with me. I am I'm feeling so happy that I joined this because everyone that has it like Michael J Fox, who is very… read more