Quick Links
Resources
About MyParkinsonsTeam
Powered By
Oh come on. We all know it's an issue. We'll talk about punching our partner in our sleep, but toilet troubles rarely feature.
Let's be bold. I'll start. Not so much a bowel problem, more a hands and arms one. Yes, like Mr Miyagi I find I "wipe on" as much as I "wipe off"...
The strain of reaching back seems to reduce any control to a minimum, as well as making applying any meaningful pressure impossible. I feel like I'm Prince George waving a hanky at something objectionable rather than… read more
😂😂😂😂😂😂
@A MyParkinsonsTeam Member You give me hope that there is a solution to my issue one way or another! Thank you Frik!!
Has anyone found neck or back supports helpful
After seeing this picture, I'm thinking of buying a neck pillow (type you use on an airplane) for my hubby.
I feel like I experience increased anxiety as the medicine is wearing off. It feels like a rollercoaster each day.
Any time, I'm happy to share our experiences. It often felt like we were blindly re-inventing wheels, so I imagine other may feel that way sometimes!
For remembering medications, we used a magnetic… read more
My dr is a neurologist wh runs his own Parkinson’s treatment center. I just came across him on Google. We love him. He always takes as much time as we need to share our concerns and to get an… read more
The stages are just guides. Don't let them control your life.
Exercise & learn!
Jack
I use Pro-PD as a symptom tracker, but I have yet to see a phone app that makes full use of the power built into a modern cell phone (at least on the Android side).
Curled, clenched toes or a painful cramped foot are telltale signs of dystonia. Dystonia is a sustained or repetitive muscle twisting, spasm or cramp that can occur at different times of day and in different stages of Parkinson’s disease (PD). Dystonia is a common early symptom of young-onset Parkinson’s, but it can appear during any stage of Parkinson’s
Managing Dystonia
It can be helpful to keep track of when dystonia occurs to figure out if there is a relationship between the onset of… read more
Great information Thanks to all
I get overwhelmed by crowds now. I tend to avoid them if I can. Having my husband beside (or in front of) me helps a great deal. He tends to create a path for me, gently moving people out of the way.
I have the times set on my phone. I find the trick is to be in the same room as your phone. I just don't hear my phone unless I'm near it !