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Pain
A MyParkinsonsTeam Member asked a question 💭

I have shoulder pain and neck pain, does that have anything to do with Parkinson ?

posted November 20, 2019
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A MyParkinsonsTeam Member

My mom had terrible shoulder pain until she started Amantadine. It really helped, and very quickly too. Sometimes she has stiffness or tightness that causes pain, the heating pad helps that.

posted December 17, 2019
A MyParkinsonsTeam Member

Thank you i am going to dr today so i hope to get some answers
hope you have a good day !

posted November 21, 2019
A MyParkinsonsTeam Member

An additional description of my pain - head, neck and shoulders feel as if I was experiencing fairly severe muscle cramping or spasms, yet when I move there is no muscle lock or any other restriction of movement in the areas of pain.

These pain episodes usually indicate I am entering an "off" period, but not always...the lack of consistent behavior is as irritating as the pain itself.

posted November 21, 2019
A MyParkinsonsTeam Member

I have shoulder problems but not from PD. It is from a disc in my neck.

posted November 21, 2019
A MyParkinsonsTeam Member

Parkinson’s disease (PD) pain is unique, so finding words to describe it is difficult. Not all those with a diagnosis experience pain. But for some, like me, pain is the major, disabling symptom. It is important to find words that describe the pain experience as clearly as possible. There is no “grin and bear it,” nor is this “a pity party.” Instead, this is a search for accurate articulation of the pain experience to help maintain quality of life.

Pain may be an early symptom of PD, according to a study presented at the 2018 World Congress on Parkinson’s Disease and Related Disorders titled “Pain: A marker of prodromal Parkinson's disease?”

The American Parkinson Disease Association published research that supports the connection of pain with Parkinson’s, suggesting that if the pain is relieved with dopaminergic medication and the patient has a pattern of painful sensations that correlate to “off” episodes, more credence can be given to the idea that the pain is PD-related.

PD pain can resemble pain from other disease processes, especially as the patient ages and faces a multitude of other pain-causing conditions such as arthritis, spine degeneration, poor muscular conditioning, and such. In my case, PD pain is distinguished by the following:

The progression of body pain correlated with the progression of the disease over time.
Levodopa, a dopaminergic therapy, successfully reduces the pain.

The pain is worse during “off” periods.

My PD pain also has a particular characteristic: stinging (sometimes knife-jabbing), irritating tingling, burning, and muscle heaviness with increased pain on movement. This pain happens over large regions of the body and varies in severity. At its worst, it can last several days and reach level 7, inducing spontaneous tears.

PD with episodic chronic pain is disabling in several ways. First, high levels of pain obstruct clear thinking. Second, high levels of pain induce the fight-or-flight response, which interferes with emotion management. Third, the amount of energy necessary to manage it is very tiring (even more so in the face of the deep fatigue associated with PD). Chronic PD pain entails much more than body symptoms.

Parkinson’s pain is a total experience that touches thoughts, feelings, and relationships. Even when it’s a struggle, finding the words to describe pain experiences is imperative to maintaining quality of life in the face of a difficult diagnosis. Finding the right words helps one communicate the pain experience to care providers, family, and friends — a network of relationships that help form the foundation for quality of life. By communicating the pain, those close to me are more understanding of why I act the way I do, which helps to maintain those relationships.

And the only thing worst than PD Pain, at least for this PD'er, is the constant feeling inside my body that my individual biological cells are always on fire and churning cement - JOHN

posted November 21, 2019

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