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I use an iPad Mini with a cover that can be used as a stand so I don't have to hold it. I also have a "Flippy" that our daughter gave me that is a triangular thing that can be used to hold a tablet at… read more
My step mom has finally opened up to asking my dads doctor about CBD as an additive to his regime of medications. I found out today that they are just taking 22mg of hemp oil...brand name common sense to help with sleep. What else should they be asking the doctor for? His tremors have gotten worse.
I have heard it works for some people and not others and dosage and strength and quality is crucial. I tried in when i was in New Hampshire for 10 days in August and everyday i had to modify. But… read more
I was watching a program about t m i and so called it helps with anxiety and gives mindfulness?
I agree with @A MyParkinsonsTeam Member, breathing exercises really help.
it definitely affects our body temp some days i cant get warm and some nights i can get cool enough so i use a fan on low focussed on me so my fiancee isnt disturbed and the rest i deal with clothes… read more
My husband had been angry alot , he has not been himself lately. His has Parkinson's for 10yrs now and had never acted in this way before
Its the disease and the frustration and depression it causes. When was he diagnosed?
Wombat I use apomorphine pump for off time and dyskinesia has helped me
Is SINEMET 25-100 the same as carbidopa levodopa 25-100. My basic understanding was that S.... is original drug name and L.... the generic. Taking 8.5 leva/dopa a day for quite sometime with gradually worsening overall condition, feel I should at last acquire from others rather than my neurologist (may I add this is my sixth neuro since diagnosis 10 years ago. Look forward to any replies, and suggestions as to other Parkinson treatment medications, Believe that I have done all I can in the… read more
After going taking my husband to a Neuro dr who admitted she was not really up on Parkensons I waited a year (with Covid coming) to get into a PD specialist. I just feel we lost a lot of valuable… read more
After walking a few miles or doing too much or even going away for the weekend I seem too get nauseous and headachy and don’t feel good, sometimes for a couple days... has anyone else had this experience?
I feel like this too. I can do a little bit and then I’m tired or get a headache. I do better in the mornings. With that said my husband just brought down 5-6 tubas for me to go through and… read more
Are there stages and how would I know what stage I am in?
Sorry i havent done it i have been through a seried of major off sessions for days on end and then the recovery. This is my first time back online in over a month my apologies.
Have you even heard of these diagnoses? They can be associated with PD or other neurological conditions. I'd like to know what others have done that helped or didn't help. My symptoms are aggravated by standing erect, which I can only do for about 3 minutes unless I am leaning on a walker or shopping cart. At that point, my abdominal muscles go into painful tight spasms that can last 8 or more hours. The diaphragm also goes into spasms. The spastic muscles pull my upper back forward which then… read more
Have you had you PT check the way use walling sticks, i thought i was using right but she made some adjustments and showed me some new techniques and it made world of difference and the wheelchair is… read more