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Episode?
A MyParkinsonsTeam Member asked a question 💭

We have what we call Episodes where he either just stares off and does not respond to you or has almost like an seizure. Does anyone else have anything like this. Our NP just blows us off.

posted July 27, 2021
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A MyParkinsonsTeam Member

Tell hospice that you want to change Dr.

posted July 29, 2021
A MyParkinsonsTeam Member

Yes I do. I have episodes where I would just collapse meaning legs go and I hit the floor found out it’s the autonomous part of the brain (thanks to Parkinsons) which caused a break in my ankle and leg which now I have 7 screws and a plate. I take Nuplacid for the seeing things that are not there and for the staring off into space lol. I’m being sent to a specialist about the autonomous issues next week so I will let you know what they say.

posted July 31, 2021
A MyParkinsonsTeam Member

I would get into her face if she kept blowing me off when I ask a question or want her opinion on something. I'm paying for her time and opinions.

posted July 28, 2021
A MyParkinsonsTeam Member

Wish we could change Dr it's one that was assigned to us threw Hospice he was discharged from Hospice and this person is still asigned to see him.

posted July 28, 2021
A MyParkinsonsTeam Member

See a neurologist. It could be seizures. I would also change Drs.

posted July 28, 2021

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