Yep doctors don’t know everything. But we have to rely on them at this point. Which is difficult. I’m going to be seeing my third neurologist because some just don’t want to listen . It’s sometimes difficult to find a good neurologis who knows Parkinson’s really well and knows what we go through. Absolutely “yes” is my answer to your question about random acts of pain I guess I would call them. You can have a foot hurt on a day you never thought you’d have a foot hurting you because there’s nothing wrong with it you say. Mr. Parkie doesn’t care if you have problems before he can send a pain anywhere he feels like it. That’s why some people’s families don’t believe them because it sounds so nonsensical. When we’re complaining every day about a different pain people tend to not listen anymore. But it is true Parkinson’s is a fierce battle to fight. We pretty well know we won’t win this one. But someday they will have something that will make sense and work. Probably not in my lifetime. So good luck I hope you find a doctor that won’t try to send you to a psychiatrist. But one who will really listen. I’m on that same search.

Thank you for your response. Although I am very sorry for your suffering, there is some relief to know it is a real "thing" when doctors seems so mystified by my husband's symptoms and tend to want to refer us to psychiatrists.

Yes, some PD patients have unexplained pain. Mine is in my left leg, hip and even lower back on left side. X-rays and MRIs show no structural reason for pain. This is hard to accept for me, and I keep looking for a way to help this, esp as PD medicines don't help that much either.

There is with me! My thighs (all the way around my legs) have severe pain at different times of the day... Nevertheless a couple of PD Pills (aka "Carbidopa/ Levodopa") can make it go away! Go figure! 🥺

Can the pain last for 3 months?