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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗
My husband was told by one doctor that it was Parkinsonism from a bad fall. He is treated the same as Parkinson's. It is very hard to find information that separates the difference of the two.
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
My neurologist says I have DIP. Does anybody else out there have the same diagnosis? I would like to hook up with fellow DIPper to compare medications that might be suspect. My doctor suspects Vraylar, Lithium, and Clonazepam the latter of which I'm weaning off now.
Alison4
Kenneth Bruce you may not intend to sound cold an uncaring. But let me tell you. I was diagnosed with DIP and it was traumatic. It’s not just a snap of the fingers to change teams. Insurance, how do… read more
(editng to say i was wondering more specifically if anyone here has been diagnosed young). I’m worried my doctor will poopoo my suspicion of parkinson’s because I am 38 And don’t have a visible tremor yet.
My first symptoms showed up when I was 5, freezing and gait issues. The doctors at the time couldn't figure out what was wrong. They finally came to the conclusion that I was having a severe and… read more
How did your neurologist differentiate between the 2? I know this isn't an entirely Parkinson's question, but I would like to know if anyone else has been told it might be MSA.
Alan, I reached the point of thinking I just couldn’t go on intil I took the big program and the physical therapist mad the call then I was sent bu to my neurologist who had gone over every symptom I… read more
One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more
Possibly. Not som
eveilevodopa
I'm so glad Parkinson's has been kind to you. My prayers for you to continue your journey as well as you are. HUGS.