Different When They Stand Up Rather Than Lay Down. When I Stand Up It's Like I'm Drunk. And Gets Worse As A Day Goes On. Other Signs Of PD. | MyParkinsonsT

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Different When They Stand Up Rather Than Lay Down. When I Stand Up It's Like I'm Drunk. And Gets Worse As A Day Goes On. Other Signs Of PD.
A MyParkinsonsTeam Member asked a question đź’­

When I lay down I don't know that I have Parkinson's that much. But as soon as I stand up have slow motion, balance issues galore, speech problems now, double vision, real dry mouth, bowel issues, the neurologist said I had two years about a year and a half ago. I fired him so I haven't seen one since. But very difficult to walk Valentine both sides now. The pain is above my hips, I can't hardly turn over in bed. And more.

posted November 12, 2022
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A MyParkinsonsTeam Member

Who are these Neurologists who are handing out life expectancies?

This place looks good.

https://bvitalpc.com/parkinson/?gclid=Cj0KCQiAp...

Parkinson’s is not a death sentence!

What you need is a Movement Disorder Specialist. They are trained and certified in Movement Disorders. You should get one and see them ASAP. Your old neurologist may have said that for a reason. There may be an actual issue there. Find out from an expert.

posted November 12, 2022 (edited)
A MyParkinsonsTeam Member

Does anybody have an answer for my head.? Is that uncommon?

posted November 12, 2022
A MyParkinsonsTeam Member

Sid,

I’ve actually been where you are. In my case, it was due to stress. Getting out from under that stress, and starting an exercise program brought me back to a stage one symptom level.

First off you need a movement disorder specialist. The link I provided was for one in your area.

Secondly, you need as much exercise as you can get. I know that sounds ridiculous when you can’t even get out of bed, but there’s a program for every stage of this disease. You’re movement disorder specialist can assist you with this.

There are YouTube exercise videos you can follow along with in the meantime. However, you need to make sure you are safe to do them. It sounds like you are experiencing severe vertigo. A physical Therapist can help you with that. Your movement disorder specialist can set that up for you.

posted May 29, 2023
A MyParkinsonsTeam Member

The neurologist said I can't wipe my butt not that it will kill me.

posted November 12, 2022
A MyParkinsonsTeam Member

Medication may be able to help with some of your issues. Physical therapy can help with balance issues. You need to see a neurologist or Movement Disorder Specialist. As Dale said, Parkinson's doesn't kill you. So it's up to you to find the best treatment for your symptoms that you can get.

posted November 12, 2022

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