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I live in the 93012 area and have not as yet found a Doctor versed in this aspect of Parkinsons. They are not fluent in understanding the interactive issues with RX and the potential results which can happen when wrong. Note: Movement disorder specialized doctors, so far I have found, are not versed in GI complications.
Also the Parkinsons Association of Northern California (PANC). they have a lot of information.
Let's start out with getting the sad news out of the way- Presently, the only FDA approved therapies for non-motor symptoms in PD apply to hallucinations and delusions, low blood pressure and dementia
PD Psychosis
-Nuplazid (pimavanserin) was FDA approved in 2016 for treatment of psychosis in PD.
-When psychosis poses a safety risks or impacts the person, family and/or caregivers quality of life, medication may be necessary.
-This med works on the brain's serotonin system and may also improve… read more
Good information! Thank you Lucinda!
Our support group contacted a regular boxing trainer. WE are going through regular training the same as his boxers. no sparing. 3 females and 4 men. We all enjoy it. 2 one hour classes per week… read more
John Hopkins neurology Center. They have a whole neurology team and are willing to try and try and try to make life better for Parkinson's patients. Their meds that they prescribe are often on The… read more
There are no local PD support groups in that I have been able to locate in my area. I’ve contacted a Parkinson’s.org ambassador for my region & he didn’t know of any either. Ideally it would geared towards Early onset, but coming up blank.
My question is have any of you started a support group for your town or county? I’m considering taking that on, but honestly I’m at a loss. Any advice would be appreciated.
I’m located in Aledo, TX. We are in between Fort Worth & Weatherford which are both… read more
If you have a YMCA in town I would check their resources.
Both orgs have websites and you can search for local support groups/chapters there. The Rock Steady Boxing website also has a search feature for gyms in your area.
I had mentioned the drug before which was a one pill slow release Amantadine which is called Gocovri, which is being used to treat dyskinesia It has been approved by the FDA. It is for those who experience side effects from amantadine now have another option. The second drug is Exenatide, a medication used to manage diabetes. Primary outcome was an improvement in motor symptoms and may slow the progression of PD. All information was taken from the Parkinson Report Fall/Winter issue just in… read more
Is that the CBD form?
My wife and family cannot always be here to take care of me. So in their absence I have two caretakers that I would like to tell you about. The first is nacho a 6-year-old boxer. The second is his older brother Baxter which we have part-time.
On the days I can't get out of bed they make sure that I get on my feet and start moving. If it isn't to feed them it is to take them for a walk. (Some days I can take a walk and some days I can't)
On bad days, after breakfast I lay down again. Once again… read more
Norm2222, I was very young when we. left Utah and moved to Arizona. We lived in Orem for my father finish his graduate work at BYU. Just to give you an idea where we lived I think our address and Orem… read more
Birdsong, try Mark Cuban's Cost Plus online pharmacy. It carries the medication you mentioned at a price of 100mg 90 count @ $50.90, 200mg 90 count $79.70 and 300mg 90 count $120.20. You will have… read more
Stress really sets me off. I am looking for some fiction to read that is low stress. Do any of you have books that you would recommend?
🦉
Oh yes, & C.J. Box.