do any of you have big extremes between being on and off what do you do when you are off sit and wait and Parkinson's disease | MyParkinsonsTeam

Connect with others who understand.

sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "do any of you have big extremes between being on and off what do you do when you are off sit and wait"

reset
Does Anyone Here Have AFIB And PARKINSON'S?
A MyParkinsonsTeam Member asked a question 💭

My husband is having so much trouble with Parkinson's meds making his heart go wacky :(

A MyParkinsonsTeam Member

see your neuro asap or a cardiologist and take your med list. I may not be the meds there may be other underlying problems hidden by meds
Cheers and goodluck hope it all improves. Have a great… read more

I Have Problems With The Right Keys On My Tablet Or Phone Screen
A MyParkinsonsTeam Member asked a question 💭

When my fingers are so jerky, I have a hard time hitting the right keys. Sometimes it takes a dozen times, especially to put something in the space bar (is that the right word?) for searching. It doesn’t have words that pop up to help you.

A MyParkinsonsTeam Member

That is an automated teller machine. Have to be able to hold steady enough. Always a crap shoot

Does Anyone Notice That They Smell Different?
A MyParkinsonsTeam Member asked a question 💭

I have noticed I smell different especially in the morning and I don’t like it but can’t get away from it

A MyParkinsonsTeam Member

Turns out I just needed a shower. 🤭

Sinemet
A MyParkinsonsTeam Member asked a question 💭

Is SINEMET 25-100 the same as carbidopa levodopa 25-100. My basic understanding was that S.... is original drug name and L.... the generic. Taking 8.5 leva/dopa a day for quite sometime with gradually worsening overall condition, feel I should at last acquire from others rather than my neurologist (may I add this is my sixth neuro since diagnosis 10 years ago. Look forward to any replies, and suggestions as to other Parkinson treatment medications, Believe that I have done all I can in the… read more

A MyParkinsonsTeam Member

After going taking my husband to a Neuro dr who admitted she was not really up on Parkensons I waited a year (with Covid coming) to get into a PD specialist. I just feel we lost a lot of valuable… read more

Has Anyone Experienced Nausea And Flu Like Symptoms After Over Exertion?
A MyParkinsonsTeam Member asked a question 💭

After walking a few miles or doing too much or even going away for the weekend I seem too get nauseous and headachy and don’t feel good, sometimes for a couple days... has anyone else had this experience?

A MyParkinsonsTeam Member

I feel like this too. I can do a little bit and then I’m tired or get a headache. I do better in the mornings. With that said my husband just brought down 5-6 tubas for me to go through and… read more

How Do You Stay Positive In The Context Of Parkinson’s? What Do You Do And Say To Yourself And Whatever Else To Stay Positive?
A MyParkinsonsTeam Member asked a question 💭

How do you stay positive in the context of Parkinson’s? What do you do and say to yourself and whatever else to stay positive?A few quick thoughts from me
- I practice mindfulness during the day so that I’m focused on the present, the very immediate present. I practice about 1/2 hour in the morning and maybe once in the afternoon. It also reduces my tremor, but mindfulness is about accepting, not trying to change anything
- Intentionally thinking of gratitude in my life is important.… read more

A MyParkinsonsTeam Member

I’m not traditionally religious. But I do have a positive commitment to make the world better and to help others. But for other activities that help me stay positive I was thinking exercise. I used… read more

Kind Of Embarrassing. Does Anyone Have Problems With Excessive Gas?
A MyParkinsonsTeam Member asked a question 💭

Started a few months ago. Bend over a little and well you can guess. Talk about excessive amounts. The excessive amounts, you could blow up a party balloon. The excessive gas is a warning sign of a need for an imminent bowel movement. The gas turns to cramps and you better take it seriously.

It's an embarrassment, is it PD?

A MyParkinsonsTeam Member

Sounds like something I need!

PD And Ocycodone
A MyParkinsonsTeam Member asked a question 💭

My husband fell. The MRI showed pulled hamstring. He was in so much pain. The ER doc prescribed 2- 5 mg oxy every 8 hours. He was so groggy. He couldn’t walk at all. Slurred speech. I lowered the dose (because no doc would call me back) and he’s much better. Should he taken ocycodonr at all?

A MyParkinsonsTeam Member

my test will come next year when i have both shoulders replaced (second time for left dominant one which failed on firs op in 2016). neuro and Ortho are discussing doing both at once and then putting… read more

Does PD Cause Light Drooling? Or It Might Be Facial Hair When I Grew Goatee To Reduce Shaving.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Drooling is a common symptom of PD. It was what finally got me to a doctor, thinking I had some type of mild paralysis on one side of my face. From what I understand, it's because we don't swallow… read more

Living In Humid Climates
A MyParkinsonsTeam Member asked a question 💭

Does living in more humid climates have any impact on Parkinson's family?/

A MyParkinsonsTeam Member

I am in mexico city and lived in singapore for 16yrs and more recently travelled a lot to nyc during summer didn't seem to make a difference i find colder weather and wind really affect me.