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Every patient has their own Parkinson’s. My tremor had only recently manifested. I’ve had Parkinson’s for 6 years by diagnosis ( much longer in reality). Tremor free.
My symptoms were mostly… read more
I’ve attached an excellent article that explains a little bit about non-motor symptom. It includes a runny nose, but does not say anything about congestion. I they couldn’t find anything that… read more
This after 12 hours total sleep and at least hour’s nap.
The other thing they don’t understand is how different it can be from one patient to the other. Some of us look good because of PD manifests with non-motor symptoms.
Hi All, if you have had DBS could you let us know of the process before the op and the post-operative outcomes.
Below is a portion of an update on the current state of DBS. It was published by NIH on the PubMedCentral site. You can search for the entire article on the PMC site under #PMC (Phone number can only… read more
It has been over a year since my first neurologist appointment. Since I had no motor symptoms, he was unable to give a definitive diagnosis. I still don't have any motor symptoms but did have a DaTscan that was indicative of Parkinson's or Lewy Body Disease. I'm going back in a week and a half for my follow-up appointment. I've started with hallucinations--not many and not frequent but disconcerting nonetheless. In my local boxing group, no one else has REM sleep behavior disorder and everyone… read more
Already take it for the RBD, along with a low dose of clonazepam. The hallucinations occur when I am awake, usually before I fall asleep but in a low light environment. I’ve added a nightlight to the… read more
Flucuations in my symptoms happen.
However I still have PD. Im sure
It could be in remission of symptoms at times that is all Im
aware of.
Kathi
I am on [[treatment:Stalevo:55d552481fcaa30c[[phone:37000045]] 200:]] mg with 3 doses per day. Recently I am experiencing wearing off symptoms (both motor and non-motor. Anybody here faced this issue? What is the best way to manage this. BTW I am also taking Amantadine (2 doses 100 mg each). Any suggestions of strategies that worked ?
Have you contacted the Neurologist who prescribed your treatment?
Thank you for your input
I've been reading about many different types of light therapy one being a helmet but there are other forms.
I started doing red light therapy about 10 days ago. We bought a panel that hangs or stands like a full length mirror and I sit or stand close to it for 15 to 20 minutes. So far, no benefit I can… read more
The DATSCAN is the only definitive answer. All the test etc. are just a waste of time. Good luck.