@A MyParkinsonsTeam Member, First of all, I'm 66 and was diagnosed with Parkinson's seven years ago. So, you are very right in your assessment of my inability to fully understand your life, your challenges or position. I do, however, know a few things about Parkinson's and the way it invades your life, laughs at your accomplishments, limits your abilities, shakes you to your very core (I used shakes on purpose) and it will infiltrate every atom of your being, use your energy and steals precious moments. That's the truth with no holds barred. You can resist. You can fight. You can put on a positive personality or you can sulk in a dark room so that no one can see you, or help you, or guide you. Having PD doesn't have to be the period that ends your life, but if you do have a Movement Disorder Specialist's diagnosis calling your situation an accumulation of symptoms that define Parkinson's, I'm sorry to share with you that you have, at least, come to a comma in your life. You had a life before Parkinson's, (comma) now you have a life with Parkinson's. You may think that others are looking or watching you....maybe they are, but more likely they are watching for a way that they can help you, support you and accommodate your disability by adjusting your environment, your job responsibilities and your new needs. I know that Parkinson's Sucks. I know that you don't want to be a person with PD. I know you want to have your old life back. I know you think that you can beat this monster because you're too young. I'm old. I have PD. I mourn my lost life, (comma) but I am going to live as fully and completely as I can for whatever days are left for me. I fight back, (exercise is critical....I do Rock Steady Boxing and Tai Chi), educate yourself on everything PD, check out support groups, go on line to the Parkinson's Foundation site, the Davis Finney Foundation site, talk to your doctor, get a specialist movement neurologist, talk to a counselor or psychiatrist. Parkinson's Sucks...we can surely agree on that. Get help, get advice, stay strong and focus on all you can do and give yourself permission to leave behind those things that you can no longer do. Best wishes for a full, involved and happy future.

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A MyParki...

I don’t want to be rude or anything like this but I am younger than most of you here and I don’t know how to say it my parents and others. I am sick of hearing I am too young for this and what I gonna do when I will be 80. Or explaining again and again why I ask on distance. Why am I taking medication and what kind of medication I am taking. If I tell them they gonna freaks out. I did that mistake twice. The place where I am going dancing the management informed every single person to look after me. I can feel the eyes starring at me if I am getting tired. If I can make it upstairs or downstairs.... I want people look at me normal. Not worried about me fall down. I was having trouble in previous job and the manager wanted medical records to accommodate my job for me. How they wanted to do it without tell everyone why and it was obvious I can’t do that kind of job anymore part time. I knew I had to leave.
I don’t know how to tell and when to tell.

I am lucky my hands mostly don’t share unless I am tired or forget take my medication on time. But I can get tired in face and my voice is getting softer and my walking is the biggest issue or long standing without support

I wonder the same thing! I sure can't tell it's mine!!

I sometimes wonder how the bank accepts my credit card machine signature!

Me too!