Parkinson's disease

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6 medium

I have bad night dreams, yelling, cussing and falling out of bed. Is this consistent with Parkiisons?

posted about 3 hours ago
A MyParkinsonsTeam Member said:

It can happen with PD but may be related to medications reactions also. So check for interactions or contact md just to verify

posted about 2 hours ago
9 medium

Age of Diagnosis

We have younger people to sign on as members maybe out of curiosity but searching for support also. Some have even said right away, are there any members on here my age? I think that is a normal question for a younger person to ask. However, I don't know how to answer them. I do suggest they go to Q+A but that's all I have. Is there a better answer?

posted about 5 hours ago
A MyParkinsonsTeam Member said:

I was diagnosed mid 40s but have it since I was 42 that’s when my right leg started dragging and tremors began

posted about 1 hour ago
8 medium

Azilect

use frech info merci

posted about 7 hours ago
A MyParkinsonsTeam Member said:

La rasagiline appartient à une famille de médicaments appelés inhibiteurs de la monoamine oxydase (IMAO). Il est utilisé pour traiter la maladie de… read more

posted about 6 hours ago
1 medium

Anyone suffering from extreme muscle contractions (buttocks, thighs, and calf muscles), pain, and immobility? If so, suggested treatments?

I was diagnosed 11+ years ago and until March 2018 was able to walk "decently". Since then strong muscle contractions occur even to the point of extreme pain and total immobility. Part of the problem is no real pattern or common variables exist to help find a solution. Neurologist thinks I am a half bubble off center.

posted about 8 hours ago
A MyParkinsonsTeam Member said:

Drs. do not know everything. But I have not experienced that so far anyway. I have been told by a student in high school that I ws crazy. I replied,… read more

posted about 6 hours ago
3 medium

Is there any truth in this myth?

In the latest LJ Ross thriller (The Hermitage) on page 240 one of the villains is in the later stages of Parkinsons and is reported and saying the following:

"When you are diagnosed, you're given a choice. Either take the drugs, that'll make the trembling stop alongside the other physical symptoms but be prepared for a mental decline. Or vica versa. Put up with the physical symptoms but keep your mind in tact for longer. I chose to preserve my mind, such as it is."

This was… read more

posted 1 day ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, this theory could be as fictional as the book. I write "could be" as there may be people that have benefited from this… read more

posted 1 day ago
7 medium

Gocovri Amantadine

I took Amantadine for about 2 1/2 years along with carpadope/ levadopea and enticapone. The amantdine helped with the tired, fatigue feeling every day. I worked up to 4 doses a day and I was not tired and seemed to have a lot more pep and energy, but a few months ago I started having a , I will call it a psychotic issue where I was misinterpreting things is saw in a very weird way. I take a FMLA from my work for about a month to get better. Not taking that drug now but feel tired a lot of the… read more

posted 1 day ago
A MyParkinsonsTeam Member said:

I was taken off amantadine .,when I took it ,I felt like I had bright lights emanating from my eyes Weird side lights in my peripheral vision right side… read more

posted about 22 hours ago
9 medium

I am having trouble staying asleep; I wake up between 2a.m and 4a.m and feel wide awake Anyone out there have this problem? Resolution?

posted 2 days ago
A MyParkinsonsTeam Member said:

I'm one of the "lot of us". Ironic that we need good rest for this PD but find it difficult to sleep through the night. The only way I've gotten a good… read more

posted 1 day ago
0 medium

Deep brain stimulation

posted 3 days ago
A MyParkinsonsTeam Member said:

Recovering from bilateral DBS. Glad I had it done, but learning to cope with new challenges. Keep busy with PD exercises, which help, started using a… read more

posted about 15 hours ago
8 medium

Neuro parkinsobs pt and it

Hi
Was wondering. Has anyone gone to Helen hates in my fir parkinsons pt and ot. They claim to have s special program. It’s far fir me but wondering if it’s wirth the trip. They said they could help me. I’m in s wheelchair. Just been through years of pt and I’m not encouraged after the promises. Anyone been or heard Helen Hayes thanks!

posted 3 days ago
A MyParkinsonsTeam Member said:

Thank you so much for that resource. I will check that out!
Much appreciated

posted 1 day ago
5 medium

Does anyone experiencing constant back pain at various levels of intensity get spasms which lock you up until the pain eases?

posted 3 days ago
A MyParkinsonsTeam Member said:

Yes, I do get back pain and spasms as my spine has twisted and I am stooped and lop sided. I also do some very gentle stretching to ease the spasms and,… read more

posted about 11 hours ago
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