Parkinson's disease

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7 medium

Compulsive Tongue Sucking

Hi, all. I’ve recently developed a most curious behavior. I suck on my tongue – constantly! This is no small matter! My tongue is raw, with sores all over it caused by the constant irritation. This has gone on for about two months now and I have never done it before. I’m wondering if it is the Parkinson’s itself or the medication. (I take carbidopa-levadopa 25/100 3X daily.) I know that this medication is associated with some compulsive behaviors. I think this definitely qualifies as… read more

posted about 6 hours ago
A MyParkinsonsTeam Member said:

I take the same dose as you do...so far so good but i have bad dizziness as side effects but my neurologist gave me something for it and now I'm not… read more

posted about 5 hours ago
0 medium

Sinemet IR or Sinemet CR??

For those of you on sinemet, do you prefer sinemet immediate release or sinemet controlled release? My neuro is taking me off mirapex( due to bad side effects) and wants me to try sinemet. I don’t know which one I should try.

posted 1 day ago
A MyParkinsonsTeam Member said:

Sorry not to reply before, - I didn't have the opportunity.

I take one 25mg carbidopa/100mg levodopa three times a day with, or just after, food.

I… read more

posted about 1 hour ago
4 medium

Tiredness and Parkinsons

I am just wondering if any one else has this problem. I get a fairly good nights sleep, but am just as tired when I wake up and during the day it get worse. TIA

posted 2 days ago
A MyParkinsonsTeam Member said:

I sleep real good at night, except when I have to get up and use the bathroom. When I get back to bed I go right back to sleep. Although I sleep good at… read more

posted 2 days ago
5 medium

Does anyone else struggle just to pick up and use a cell phone?

What tips or advice can you give to someone suffering with Parkinson's who sometimes struggles to pickup a cell phone and struggle to input the initial screen unlock code? I have friends who say: "If you need help with anything just call." I find that an impossible task at times. Thoughts? Ideas? Tips? I guess I may have to become friends with Siri first for my iPhone.

posted 3 days ago
A MyParkinsonsTeam Member said:

Thank you so much. Sometimes I get lazy and voice text well let me tell you the things that have come up some not so good so I stopped that.

posted about 3 hours ago
9 medium

Is there anybody out there that has opted for natural treatments in stead of normal Parkinson's medications and what has been beneficial?

posted 4 days ago
A MyParkinsonsTeam Member said:

Totally illegal you need prescription here for ibuprofen nearly very strict actually ridiculous Perfectpitch even things like melatonin not legal

posted 2 days ago
8 medium

Problems with eyes

For the last four or five months I have been experiencing “floaters” in one of my eyes. The same side as the PD started on. I went to the eye doctor and had full examination and everything was the same except for the floaters. What I have read and been told that this is normal for older adults. Not much to do unless it gets worse. Anyone else with eye issues. I know medications can cause things like dry eye but floaters? Thanks.

posted 4 days ago
A MyParkinsonsTeam Member said:

Most of the time "floaters" are just normal bits of tissue that will be absorbed through time. Nothing to worry about. I've seen them all my life.

posted 2 days ago
3 medium

pramipexole effectiveness

I'm starting to take pramipexole ER at 0,26 per day , after how long should I expect to see some results ?

Thank you ,

Luca.

posted 4 days ago
A MyParkinsonsTeam Member said:

Thank you Linda... I'm still at 0,26 , have to raise to 0,52 next week....we'll see...

posted 4 days ago
3 medium

dry eyes

Is anyone having issues with extreme dry eyes? I had had some issues along the way but recently my dosages of carbidopa levodopa has been increased at it seems to have worsened. I have tried lubricating drops but not really doing enough.

posted 5 days ago
A MyParkinsonsTeam Member said:

Mine are so dry that when I wake up in the morning my eyelids are glued to my eyeballs with no cushion of tears to protect them. Can’t be good for the… read more

posted about 6 hours ago
7 medium

levodopa

I have been on levodopa for the past few years and found that it worked fine. However lately I find that it stops working after about 3 hours leaving me shaking badly (for about 3 hours). . Has any one else experienced this and if so is there a way to stretch out the time so that it works for the whole day.
Many thanks

posted 6 days ago
A MyParkinsonsTeam Member said:

Probably is dyskinesia many PD medication present this persistent movement and is related to an increase or a low dose sometimes we do not need to… read more

posted about 17 hours ago
7 medium

Sinemet causing issues

Hi, I have a question, my husband is the one with Parkinsons. We are having an issue that when he takes his sinemet, that he has taken for 20 yrs, in different amts, he kind of loses all sense of reality. Another way to put it is he is almost like he is drunk. Any amt he takes makes him like this. Also having a very difficult time walking which he was doing gone most of the time. Talked to neurologist.... “take more sinemet, then take less”
but nothing is working. The answer I get is that… read more

posted 7 days ago
A MyParkinsonsTeam Member said:

77

posted 6 days ago