Parkinson's disease
Questions + Answers
depression and anxiety
HI all my fellow PWP's
I have parkinsons disease now for 23 years and was wondering if any of you experience depression/anxiety/apathy? do you experience anxiety/depression when you are wearing off?
if so what level is your anxiety and is it everyday>? because i have it and its ruining my life.
thank you in advance
Jean
I'm not been diagnosed with depression, but I feel like it's closing in on me. Some days not so much but I have lost lotta interesting stuff, and do… read more
Mirapex
Has anyone experienced depression with Mirapex? Also pain all over. Feet, toes, knees, hips. Thank you!
Looking for an exercise group in the Huntington WV, Ashland KY, Teays Valley WV area.
I am very interested in finding aParkinsons exercise group. I am 71 years old, still work part time, but really don't enjoy exercise. Thinking maybe being with other people would motivate me.
T.R.
boxing and spinning are great for you and also create community.
another resource for you...
Huntington Support Group
Meets the 3rd Tuesday of each… read more
Does anyone know where I could source a second-hand Sara Stedy?
These medical aids cost about 2,000 new and I would hope that I may be able to buy one second-hand in Ireland/UK. I would welcome any information on this. Thank you.
Can you not get one free from your health care provider
Progressed fast
Hi, I was wondering how fast you show signs of pd? I had hand tremors for a few yrs but drs. Said it was my epilepsy meds. But then I started walking to the side, slouching over watching TV . Until I notice what I'm doing then I sit up straight. I fall sometimes, pain in legs when trying to sleep. When I walk alot legs hurt. When getting out of my chair I have to do it slow it hurts. Question it seems like this all happened over night. My neuro said I progressed fast. So she said get a treadmill… read more
Keep hanging in there. It's so frustrating it's hard to lose sight of that. It IS normal (at least by my standards).
Does anybody else find Valium helpful?
I suffer from terrible apathy, anxiety, agitation and pain/cramps. As I’m unable to take a lot of the prescribed meds, especially ones regarding pain, depression, muscle relaxants etc. I find Valium helps tremendously with the cramps, pain, agitation and aniexty. The cramps are especially painful and I’m now getting them in places I’d never thought possible in the past, but even where I’d normally get cramps - they seem ten times more painful! My doctor isn’t keen on me… read more
I use Valium once or twice a week when I get dyskinesia. Only 5mg. It helps. It does make me sleepy.
Deep Brain Stimulation (DBS)
My partner is due to have dba in July could you please tell me if it really works ? His meds have little or no effect for his Parkinson's. My partner was diagnosed in 2006 . And he is really struggling . Neurology at the hospital he attends are terrible .
Does anyone else panic when having someone help you stand up while your weak?
The times that I am weak and need help standing up, my husband puts his arm under my armpit and helps pull me up onto my walker. Every time I panic and feel like I'm going to fall and I never have fallen yet. He doesn't understand and neither do I why I panic and sometimes almost "freak out"
I've had two knee replacements plus a month after the second replacement I stood up and tore the quadricep entirely off the bone. So that has put a… read more
Does anyone else panic when needing help to stand up? The times
DBS battery change and taking antidepressant&blood thinner.
Hi all my fellow PWP's!
Hoping you could please help me.
Is there anyone out there that is taking a blood thinner and if so are you also taking an antidepressant?
Does your blood thinner ever make you feel weak?
Is there anyone out there that has a DBS implant that has had a MRI done if so was there any complications with it being a metal device in an MRI machine.
Is there anyone out there that has had a DBS battery replacement if so did you get… read more
I was under the impression that once you have had dbs you can’t have any mri