Parkinson's disease

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Does Parkinson's react badly to clutter?

Does Parkinson's react badly to clutter?

My husband likes to buy things and leave them in the box for several weeks, then buys more until they are piled up in my dining room. I have noticed a reaction I have to this clutter when I am entering a room and my body is reluctant to go further.Is this crazy?

A MyParkinsonsTeam Member said:

dianepark, this is Dave responding. Some people with PD, on some of the various PD meds, have compulsive disorders, gambling, spending money etc. Tell… read more

posted 1 day ago

Hi all, I'm a student in California researching Parkinsons disease and I'm looking for an individual to connect with about their experience.

Hi all, I'm a student in California researching Parkinsons disease and I'm looking for an individual to connect with about their experience.

My anatomy and physiology class is having a year long project on a chronic condition. I'm researching Parkinsons. I'd love to interact with anyone willing to talk about their condition with me and how it's affected their life. Please let me know if you can help!

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - hi and welcome to the MPT gang. One thing you will notice is how eclectic the research we do can be...PD treats each of us… read more

posted 1 day ago

Can you point me to any blog sites that publish professional quality article-length posts about living with Parkinson's?

Can you point me to any blog sites that publish professional quality article-length posts about living with Parkinson's?

I was a newspaper reporter. I've got the bug to write again. I'm not looking for money, just a creative outlet. I think I have something to share with my brothers and sisters in Parkinson's, their caregivers, and any other interested constituencies. I'm particularly intrigued by the psychological aspects of living with PD. I'd also like to write features about some of the heroes I come across… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, I write too, mostly poetry. The majority of my work has been about Parkinson's for the last 7 years. My poetry often times… read more

posted 2 days ago

Is it common for signs of dementia to appear early on ?

Is it common for signs of dementia to appear early on ?

A MyParkinsonsTeam Member said:

I don't think it's common, but I can tell you that my cognitive abilities were impaired before my dx and they haven't gotten any better. Not sure if… read more

posted 3 days ago

Has anyone read this book? Any thoughts ?

Has anyone read this book? Any thoughts ?

A MyParkinsonsTeam Member said:

Thank you @A MyParkinsonsTeam Member. Where do you recommend buying the Ginkgo? I would love to see my husband's memory issues improve.

posted 2 days ago

Has anyone experienced eye twitch and light fluttering?

Has anyone experienced eye twitch and light fluttering?

The light fluttering persists when I see bright lights then look away. It comes and goes and sometimes is accompanied by twitching eye lids.

A MyParkinsonsTeam Member said:

I use eye drops

posted 5 days ago

Have been wondering about disability for PD.

Have been wondering about disability for PD.

My work days are getting to be a real difficult chore. From getting up in the morning, with not having much sleep, to making it through the day with the pain I have been having in my legs and feet, to having memory problems and many more. Can any one help me out with how the disability is done and if they were able to get it? And was it a long wait? These questions have been bothering me a lot. Help & Thank you

A MyParkinsonsTeam Member said:

shoot me a private message and I'd be happy to share my experience. I was approved in about 30 days without the help of an attorney

posted 3 days ago

Camptocormia/diaphragmatic myoclonus/respiratory myoclonus

Camptocormia/diaphragmatic myoclonus/respiratory myoclonus

Have you even heard of these diagnoses? They can be associated with PD or other neurological conditions. I'd like to know what others have done that helped or didn't help. My symptoms are aggravated by standing erect, which I can only do for about 3 minutes unless I am leaning on a walker or shopping cart. At that point, my abdominal muscles go into painful tight spasms that can last 8 or more hours. The diaphragm also goes into spasms. The… read more

A MyParkinsonsTeam Member said:

Cute answer but you know I'd only get as far as the front desk. He wouldn't even know I called.

posted 2 days ago

How did your tremor start?

How did your tremor start?

Was it intermittent? Did it start suddenly or was it just a few twitches at a time followed by more twitches later on?

A MyParkinsonsTeam Member said:

Zenie, honestly, I've never gotten used to them.

posted 11 days ago

Has anyone experienced personality change since diagnosed with Parkinson's or after DBS surgery?

Has anyone experienced personality change since diagnosed with Parkinson's or after DBS surgery?

A MyParkinsonsTeam Member said:

yes definitely especially pre-diagnosis in initial period after diagnosis i was angry at everyone and everything and then realized it was me and i made… read more

posted 6 days ago
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