We have long term health care, but I'm not aware of what we need to do in order to invoke it. Do you have any recommendations?

Our long term health care is excellent and includes home support. I am my wife's sole care giver, but I may need a hip replacement in the near future. I am also concerned that if Parkinson's progresses more we may need to leave our home, in order to get additonal support. Do we get a letter from our Neurologist or what is needed to invoke long term health care?

A MyParkinsonsTeam Member said:

The company you have the long term health care with should be able to let you know what you need to invoke that care. I would contact them.

posted 1 day ago  

hug useful?

Please share your experiences with douba pump

Has anyone else used mannitol powder? If you have, did it help your PD symptoms? How much did you take? How long have you been taking it?

A MyParkinsonsTeam Member said:

I am sorry but no. I am not taking meds yet.

posted 1 day ago  

hug useful?

Should we bring up DBS to our neurologist?

My husband has PD with some cognitive loss. He is also on dialysis for end stage kidney disease. After his treatment his tremors are often severe. He is on sinimet and levo/dopa. I believe they are clearing his meds from his system
He also is only out of be for about 6-8 hours a day.

Has anyone had success with Marijuana, Accupunture, Asian Medicine ?

sign up to view previous answers 1 of 8

A MyParkinsonsTeam Member said:

whatever works......i use it for mostly antidepressant...cheers!

posted 2 days ago  

hug (1) useful?

Has anyone been diagniosed with Gastroparesis?

sign up to view previous answers 1 of 2

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member: Sounds like something I should investigate! Thanks for bring it to light - is it something you think you may have or are… read more

posted 1 day ago  

hug useful?

Has anyone had an inconclusive DaTScan?

My DaTScan was inconclusive. I have many symptoms of PD minus tremors. The PA and neurologist say I have Chorea movements. They have been unable to provide a diagnosis. Any ideas?

sign up to view previous answers 1 of 7

A MyParkinsonsTeam Member said:

DAT is not accurate yet.

posted 2 days ago  

hug useful? (1)

What do people do for foot care?

My husband and I have Medicare insurance as our primary and we have excellent insurance with our retirement plan....Medicare has been great about paying for my husband to see a podiatrist and our insurance has picked up the balance....all of a sudden our insurance is denying our claim for podiatrist....they are saying it is routine foot care....and that I can appeal the denial but I will have to appeal it three times so they can deny it three times and then I will have to appeal… read more

sign up to view previous answers 1 of 6

A MyParkinsonsTeam Member said:

We visited the Stanley mansion in Colorado they had no children...Google the story it is interesting...have you tried yoga? Or water aerobics? I got my… read more

posted 3 days ago  

hug useful?

I am struggling with dizziness. finding myself unable to do any activities. need help

sign up to view previous answers 1 of 11

A MyParkinsonsTeam Member said:

I understand that. I have never had to take so much medicine and only 2 are really because of the Parkinson. But another one is for depression,one is… read more

posted about 16 hours ago  

hug (2) useful? (1)

Experience with Speechvive