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Parkinson's disease

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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Long Do Your Off Times Last

How Long Do Your Off Times Last

Hi! I have experienced off times now for 6 months. I have been on Nourianz now for almost 4 months. Just wondering how long your off times last. Do they ever go away? I also take 18 CL every day now and I also take 1.5 mg of extended release Pramipexole every day. Are off times something that will come and go throughout this disease?

A MyParkinsonsTeam Member said:

Peanut1015AJ I had a long standing problem with off time I stopped going out because I had gone to the shops and got stuck till sinemet kicked in scary… read more

posted 4 minutes ago

How To Clear Sticky Phlegm In Patient With Stroke And PD?

How To Clear Sticky Phlegm In Patient With Stroke And PD?

I joined this group because I have difficulty sometimes with figuring out how to manage my dad's issues as between the major stroke that left him left side paralyzed versus the PD. For example, he gets a great deal of sticky phlegm in the night from the PD. He tries to take small sips of water during the day to try and thin it and moisten his throat, but it is very difficult due to the stroke. He cannot chew or swallow any food or drink well at all due to… read more

Cant Find My Posts

Cant Find My Posts

Yesterday I posted here (2 times). Today I cannot find my way back to them . Please help/ I wish to become active here again/ thanks.

A MyParkinsonsTeam Member said:

Go to the three lines to the right of your profile picture ahd click on notification abd then click on a specific notification and it will take you… read more

posted 1 day ago

Tremors, Spasms,and Other Unpleasantries

Tremors, Spasms,and Other Unpleasantries

Do your tremors and spasms vary in intensity and number from day to day and time of day? Somedays i shake so bad i can barely feed myself. Maybe later that same day or the next day, they are gone. The samething applies to dystonia and spasms.

A MyParkinsonsTeam Member said:

My tremors vary in times of day. I do get them everyday now. I mainly get them in my left arm and hand. I have noticed they are stress induced at… read more

posted about 5 hours ago

Shortness Of Breath & Chest Pains

Shortness Of Breath & Chest Pains

Hello. Have been diagnosed with PD about seven yrs ago. Something has recently become a problem for me. I have chect pains like those associated with extreme shortness of breath and breathing becomes laborous. Have just returned home after heart examination in Seattle, They found no cause for this. Is this something othere here have experienced?

Has Anyone Had Experience With The Drug Nuedexta?

Has Anyone Had Experience With The Drug Nuedexta?

My husband is 77 and was diagnosed with PD in 2012. His motor symptoms are fairly well controlled with Carb/Levo, but he has struggled a great deal with the non-motor symptoms. His neurologist has tried various drugs over the years but my husband has experienced bad side effects with many of them. At our appointment yesterday, his doctor recommended he try Nuedexta. I said I wanted to research it first because I want to see what side effects we might be facing… read more

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