Connect with others who understand.

sign up log in
About MyParkinsonsTeam

Parkinson's disease

Questions + Answers

Don't see your question? ask question
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

How To Help PD Spouse Without Squashing His Feelings

How To Help PD Spouse Without Squashing His Feelings

Do any of you have any hints for Caregiver with regard to easing panic/anxiety, but doing it in such a way so as to honor the PD spouse's feelings but hopefully help PD spouse reign in agitation?

A MyParkinsonsTeam Member said:

You might remind him that you know he’s quite capable of many things and encourage him to teach you something. I struggle with frustration because I feel helpless; my caregiver reminds me I know what… read more

posted 27 minutes ago

I Was Wondering If Anyone Has Any Luck With Meds That Help With Freezing And Festinating?

I Was Wondering If Anyone Has Any Luck With Meds That Help With Freezing And Festinating?

Levodopa carbidopa has not helped with my major symptom

A MyParkinsonsTeam Member said:

Farley nails it 😅
Thank you
I don’t have any tremors
It’s a mystery

posted about 1 hour ago

OFF Time And Pain

OFF Time And Pain

There are times, when my medication is not as effective, then at other times. I use the term "OFF" when my meds are not as effective. During my OFF periods, I have a lot of pain, enough that I could cry. Happens mostly at night. Just wondering if this common, or happens only to me.

A MyParkinsonsTeam Member said:

I had an off time the other morning I wasn't sure what the problem was I just didn't feel like doing anything and that's not me but I read off time is usually when meds wear off

posted about 14 hours ago

Treatment For Neuropathy

Treatment For Neuropathy

Do you have neuropathy in your feet? What treatment have you found that is helpful?

A MyParkinsonsTeam Member said:

My husband takes gabapentin for nerve pain. It helps with the pain and makes it easier to sleep.

posted about 12 hours ago

Looking For Neurologist

Looking For Neurologist

I live in the Fort Worth, TX area. Do you have a good neurologist you can recommend? If so, why ?

Is It Normal Not To Of Had Any Mri’s Or Cat Scans During Neurologist Appointments?

Is It Normal Not To Of Had Any Mri’s Or Cat Scans During Neurologist Appointments?

Diagnosis in 2016 , typical road side sobriety test and boom.,.. diagnosis Parkinson’s. I just find it bizarre, no blood tests no mri no cat scan still to this date . With that.., nothing for comparison from 2016 to now. I definitely will ask my neurologist next visit. Just looking for your experiences on this forum. Thanks in advance for your time and input.

A MyParkinsonsTeam Member said:

My husband was diagnosed 2 years ago based on his symptoms and then his response to carbidopa-levodopa. In his case, the symptoms were pretty classic: tremors, shuffling, hunched posture, balance… read more

posted about 12 hours ago

At The Time Of Diagnosis

At The Time Of Diagnosis

Why do I have such severe walking problems? Just diagnosed 2 wks ago. I'm walking with a cane. Not on medication yet. Who started off with bad walking problems at time of diagnosis?

A MyParkinsonsTeam Member said:

Thank you

posted about 15 hours ago

Weather

Weather

Does the weather effect you? When it rains I can barely walk. Also in the mornings is the hardest time for me. I'm not medicated right now so my symptoms are horrible!

A MyParkinsonsTeam Member said:

Weather doesn't affect me...but boy in the am before my meds im all messed up.. walking is wobbly .. speech is slurred..tremors are more pronounced (though mine are not normally bad)..thank God

posted 2 days ago

Does Anyone Out There In Parkie Land Have A Frame Foo R Their Bed That Has A Trapese Over The Bed? If So How Do You Like It?

Does Anyone Out There In Parkie Land Have A Frame Foo R Their Bed That Has A Trapese Over The Bed? If So How Do You Like It?

I've had trouble getting onto bed and also readjusting myself once there. I saw this ad for bed for Parkinson's pt. And I'm wondering if it will keep me independent longer. i also found out that Medicare will pay for it, Any thoughts anyone? hope so!! Rosie

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member LOL! That's funny!!!😄

posted 7 minutes ago
Already a Member? Log in
MyParkinsonsTeam My Parkinson's disease Team

Want to stay up to date on the latest news and articles about Parkinson's disease?