Parkinson's disease
Questions + Answers
I have bad night dreams, yelling, cussing and falling out of bed. Is this consistent with Parkiisons?
Age of Diagnosis
We have younger people to sign on as members maybe out of curiosity but searching for support also. Some have even said right away, are there any members on here my age? I think that is a normal question for a younger person to ask. However, I don't know how to answer them. I do suggest they go to Q+A but that's all I have. Is there a better answer?
I was diagnosed mid 40s but have it since I was 42 that’s when my right leg started dragging and tremors began
Anyone suffering from extreme muscle contractions (buttocks, thighs, and calf muscles), pain, and immobility? If so, suggested treatments?
I was diagnosed 11+ years ago and until March 2018 was able to walk "decently". Since then strong muscle contractions occur even to the point of extreme pain and total immobility. Part of the problem is no real pattern or common variables exist to help find a solution. Neurologist thinks I am a half bubble off center.
Is there any truth in this myth?
In the latest LJ Ross thriller (The Hermitage) on page 240 one of the villains is in the later stages of Parkinsons and is reported and saying the following:
"When you are diagnosed, you're given a choice. Either take the drugs, that'll make the trembling stop alongside the other physical symptoms but be prepared for a mental decline. Or vica versa. Put up with the physical symptoms but keep your mind in tact for longer. I chose to preserve my mind, such as it is."
This was… read more
@A MyParkinsonsTeam Member, this theory could be as fictional as the book. I write "could be" as there may be people that have benefited from this… read more
Gocovri Amantadine
I took Amantadine for about 2 1/2 years along with carpadope/ levadopea and enticapone. The amantdine helped with the tired, fatigue feeling every day. I worked up to 4 doses a day and I was not tired and seemed to have a lot more pep and energy, but a few months ago I started having a , I will call it a psychotic issue where I was misinterpreting things is saw in a very weird way. I take a FMLA from my work for about a month to get better. Not taking that drug now but feel tired a lot of the… read more
I was taken off amantadine .,when I took it ,I felt like I had bright lights emanating from my eyes Weird side lights in my peripheral vision right side… read more
I am having trouble staying asleep; I wake up between 2a.m and 4a.m and feel wide awake Anyone out there have this problem? Resolution?
Deep brain stimulation
Recovering from bilateral DBS. Glad I had it done, but learning to cope with new challenges. Keep busy with PD exercises, which help, started using a… read more
Neuro parkinsobs pt and it
Hi
Was wondering. Has anyone gone to Helen hates in my fir parkinsons pt and ot. They claim to have s special program. It’s far fir me but wondering if it’s wirth the trip. They said they could help me. I’m in s wheelchair. Just been through years of pt and I’m not encouraged after the promises. Anyone been or heard Helen Hayes thanks!
