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Erectile Dysfunction & PD
A MyParkinsonsTeam Member asked a question 💭

Has anyone had to deal with this? The urge is there but not the total function. I've heard ED is a symptom - I'm only 60 and still want to provide that aspect of a loving relationship to my wife.

posted December 15, 2015
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A MyParkinsonsTeam Member

Great discussion everyone. I never knew of the agent orange complications beyond obvious links to cancers. My wife has stage 4 lung cancer but has survived 5+ years now and I have PD which does not inhibit me much. We still fool around, tried Viagra and that gave me a good erection but yes there are many other ways to stay close and intimate. Most important is just talking about what you're each feeling. Heck, I'm just happy my wife is still alive. Also, if one of you just doesn't have the urge ever don't begrudge your partner for masterbating if that's what they need. Understand each other's needs and discuss.

For the past three months I've had this slow feeling where I just feel like I'm doing everything slowly. My doctor just put me on Sinemet and I feel almost normal. And feeling almost normal is great.

posted June 23, 2016
A MyParkinsonsTeam Member

ED is a something my hubby started experiencing prior to being diagnosed with PD. Once he was diagnosed he was rated at 100% disability by the VA since he was exposed to Agent Orange during his military assignment to Vietnam. Apparently, the VA recognizes that ED is also part of the package deal.

There are a number of treatments available for ED. It would be worth your while to have a conversation with your doctor about which option may work best for you. It can be frustrating for your spouse as she tries to help you only to find what she does isn't enough. It can make her feel as much of a failure too.

posted December 18, 2015
A MyParkinsonsTeam Member

Women experience it also. Sometimes it is worse than others. I know I am going to have a bad day when I have to get up a lot at night and find it hard to start the stream. After having total knee replacement for my right knee two months ago, I had to use a bedside portable. It's hard to talk about, because we all fight it and don't want to admit that we need it, but truly it has made things so much easier. I even tried the disposable underwear. It's not so bad and sure helps. Don't fight it anymore, just give in and do it. We all need to not be prideful and accept what we are facing! It's quite a journey we are on.

posted December 16, 2015
A MyParkinsonsTeam Member

My husband has ED due to agent orange in Vetnam, no PD, that's my journey. He attended the VA class on ways to help. The only problem is I have lost feeling and desire. Yes, I miss it. He is my caregiver, even if I don't need much care now, this puts him in a non romantic roll. It's hard to be lovers when you are thinking caregiver. Anyone else find this to be true?

posted June 22, 2016
A MyParkinsonsTeam Member

Great answer. Yes - seeing my doctor about it.

posted December 18, 2015

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