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When You Go To The ER, What Do You Take With You?

When You Go To The ER, What Do You Take With You?

A MyParkinsonsTeam Member said:

I hope this helps - if this is a top notch hospital and has a website, it also must have a facebook. Go search for the facebook page, and post a comment as you posted above. Soon enough, someone from Patient Relations Office will respond to you. If not, go to the website, and look for Patient Advocates or Patient Relations Office - note the phone number, call to the head of the department/office. Better yet, write them an email with the dates of confinement, the unit your husband was in - all the complaints and what went wrong from your point of reference as recipient of their services. MOST OF THESE INSTITUTIONS ARE VERY SENSITIVE TO WRITTEN EMAILS, COMMENTS AND POSTS. . . . one of the benefits of social media. When my husband was hospitalised for cardiac bypass surgery, and everyone in ER, pre-surgery, ICU and step down units were indifferent about parkinson's patients - nurses, PAs, and medical staff, my eldest son posted a seething comment on their facebook page, and I/we received a reply giving us the patient relations office, its email and pohone number.

When I called first thing in the morning and left a likewise 'seething message' and sent an email to the same office, within the hour, I had someone from that office in my husband's hospital room.

posted over 4 years ago
A MyParkinsonsTeam Member said:

For those of us less tech informed---- I keep a 3 ring notebook, tabbed with each Doctor I see, with all reports in it, and a tab for current medications and schedules, and a tab for my notes with the time line of doctor visits and procedures, etc. I take this notebook with me to all Doctor visits. I also have a binder for my husband. Surprising how I need to have this information to double check medical reports.

posted over 4 years ago
A MyParkinsonsTeam Member said:

The National Parkinson's Foundation (Miami,FL) offers a free kit to take to the hospital. It has a check list along with a pad for Rx with a space for dosage amounts and times.

posted over 4 years ago
A MyParkinsonsTeam Member said:

As my husband's caregiver, I always take the kit,his meds, a list of meds and their dosages and time to take them, list of doctors, snacks, book to read, personal address/phone book, Medicare and insurance cards, picture id, and last, but not least, a copy of his living will and the document giving me durable power of attorney (including making medical decisions for him if need be). Actually, I just keep everything in a tote bag. All I have to grab is the bag, his medications and the current book each of us is reading, I just recently added his hearing aid batteries to the tote bag!

posted over 4 years ago
A MyParkinsonsTeam Member said:

I agree with Judy, plus take your medications with you. The hospital has their on schedule of times to give you meds and you know we have OUR personalized schedule. I also like to take a brochure with me called "Medications to be avoided or used with caution in PD (The American Parkinson Disease Association). I also believe there one out there somewhere in regards to the importance of giving meds on time to PWP...

posted over 4 years ago
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