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How Long Were You Able To Continue Working After Your Parkinson's Diagnosis?

How Long Were You Able To Continue Working After Your Parkinson's Diagnosis?

How Long After your Parkinson's Diagnosis Were you Still Working? Did you try and hide your Parkinson's from your employer? Did you leave the job on your own accord or were you "Let Go"?

A MyParkinsonsTeam Member said:

What a interesting question, with a lot of different answers. What my Judy did was the strangest thing of all.
Judy work for quite a while and did not tell anyone my son & daughters knew, and me of course. When Judy finally had ME talk to her pratice manager, the entire office was in a uproar. They wanted Judy to set up our computer with three medical pratice software and have Judy work from home. I told them that wasn't such a hot idea. Judy would go to work, even if she felt like she was dying. I would get Judy to her desk, get her a bucket of water, get silverware for the day, her morning yogurt. . Fax anything from the night before, then leave and I was ten off to my job. During the day the girls she worked,with would go get her lunch and a drink. Bring her snacks during the day, and would fax anything she needed to be sent out. Her doctors, Dr Trumbull had mention to us before she wanted Judy to go part time, Judy refused to do it. When Judy went out on short disability, which was a Thursday, Monday morning she quite literally could not get out of the bed.
For every Parkinson's patient their symptoms are different, treatments vary. The same can be said for disability. Judy's body told her when, she listen. I'm sorry to Judy passed away July 19, 2015. She had the diagnosis of atypical Parkinson's since August of 2014. Parkinson's diagnosis since April 2011.
I hope that this sheds a little light on the subject.
Good luck! XOXO

posted over 4 years ago
A MyParkinsonsTeam Member said:

Very difficult times for all of us that have had the pleasure of being told we have to change our whole lives due to something you have no control off. But then some times it works out for the best and you fine you are not defined by a job and You find new friends and hobbies and life is still good. Starting over seem so hard but once you manage it you are fine. Just remember you are never alone you have friends out here who understand and know what you are dealing with. Just give us a word when you need help

edited, originally posted over 4 years ago
A MyParkinsonsTeam Member said:

I stopped working 14 months after my diagnosis. I told my boss immediately since he knew something was going on with my work performance. I had still planned to work as long as I could, but after having me mini strokes in November of 2015 it became too much of a struggle, and too exhausting physically and mentally.

posted over 4 years ago
A MyParkinsonsTeam Member said:

I was working part time as a procedural nurse when I was diagnosed. I was comfortable in my work environment to share my diagnosis--almost everyone couldn't believe it as I seemed very functional. But as time went on (about 2years after starting medicine) I felt it best to retire. I was not able to do all the things quick enough to turn the procedure room around. I had difficulty clicking the keys on computer and simple tasks like screwing the lid on biopsy jar. I loved my work so this was a hard decision for me.

posted over 4 years ago
A MyParkinsonsTeam Member said:

I was a supervisor in the department of Accounts Receivables for a community college. I had several accounting technicians under me, and we had three different campuses that I would have to travel between. I was actually diagnosed with PD in 2011. I continued working till September of 2014. I know that it was God that worked everything out for me, but some may just call it coincidence. For the state of NC, I could retire with less benefits after ten years of service. In May of 2015, would have been my ten year anniversary with the college. With sick time and vacation time built up, it put my ten-year retire date at September 1, 2014. I took it and it allowed me to keep my insurance and paid me a little salary each month. I did file for disability in January of 2015 and was approved in October of 2015. When I was diagnosed, I went straight to my supervisor and my Human Resource Director. I didn't want to hide anything, mainly because I thought if anything happened like falling or something, then maybe I would be at fault. The people I worked for and worked with were wonderful. Even the girls that worked under my supervision helped me out. They began doing things that I couldn't do any longer. That's what made my decision to retire. They needed a supervisor that could do her job, I could no longer handle the stress or the work. I still try to see my co-workers now and then, and I couldn't have asked for a greater group of people to work with.

posted over 4 years ago
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