Has anyone got any of the above and how are they coping. Are you able to get about easily, has your memory been affected. Has anyone found any of the above drugs working or can recommend any others.
I am taking clonazapan, madopar, movical,solifenacin, amitriptiline, fludrocortisone,
i was diagnosed with atypical parkinson since 2012, first they thought i had the vascular varint, but about 6-8 monthsd ago my bslance , freezing and my stffness progressed rapidly that my neurologist change my dignosis to multiple systems atrophy. the medication i take now is 1 1/2 tablets of Ldopa/carbidopa 100 mg 4x a day,. with vey little or no effect. How am i coping? Struggling but still kicking.
Since then he's been on 80 mg. propanalol. When his tremors seemed worse, he called the neurologist and got the 120 mg. He felt terrible on the higher dose, and it did not alleviate his tremors, so he returned to the 80 mg. I find if he keeps stress levels down, he does better. He was EXTREMELY handy; now he cannot even use a screwdriver without shaking.. I'll do the repairs if need be; otherwise, we have plumbers and electricians to do the work. At this point in our lives it's easier to hire the professionals than deal with the inordinate aches that follow home repairs and Parkinson's.
I am taking madopar with levodopa and benserazide for the park inside of it.
Thank you. The whole Parkinson's or Parkinsonism is very confusing. No -one really wants to commit themselves to a diagnosis and quite frankly I agree is is hard to identify . I do think I have MSA and am just hoping the drugs will work to some extent. there seems more help for Parkinson's than Parkinsonism. I am trying to be positive and get on with my life but I am struggling and very frustrated.
I have my pd diagnosed on 2014 followed
by DBSin 2019. 2021 suffer severe orthostatic hypotension after than I couldn’t stand on or walked
2020 I retired.. it’s only span of 6 years, I became stage 1;to stage 5 advanced Parkinson’s
When I sitting I lean to right side,- tower Of PISSARR
I think I have MSA