i was diagnosed with atypical parkinson since 2012, first they thought i had the vascular varint, but about 6-8 monthsd ago my bslance , freezing and my stffness progressed rapidly that my neurologist change my dignosis to multiple systems atrophy. the medication i take now is 1 1/2 tablets of Ldopa/carbidopa 100 mg 4x a day,. with vey little or no effect. How am i coping? Struggling but still kicking.

I have my pd diagnosed on 2014 followed
by DBSin 2019. 2021 suffer severe orthostatic hypotension after than I couldn’t stand on or walked
2020 I retired.. it’s only span of 6 years, I became stage 1;to stage 5 advanced Parkinson’s
When I sitting I lean to right side,- tower Of PISSARR
I think I have MSA

Since then he's been on 80 mg. propanalol. When his tremors seemed worse, he called the neurologist and got the 120 mg. He felt terrible on the higher dose, and it did not alleviate his tremors, so he returned to the 80 mg. I find if he keeps stress levels down, he does better. He was EXTREMELY handy; now he cannot even use a screwdriver without shaking.. I'll do the repairs if need be; otherwise, we have plumbers and electricians to do the work. At this point in our lives it's easier to hire the professionals than deal with the inordinate aches that follow home repairs and Parkinson's.

When my husband was diagnosed with MSA he was not benefiting from CL and the neurologist decreased his dose by 50% to 25/100. He was also taking Aricept which I found out exacerbates Parkinson’s so we stopped that too
. He has actually improved!! Sleeping less, less fatigue, more able to do his simple exercises and actually getting stronger . Don’t know which helped most but I’m happy we made the changes

My HWP also tips over and falls to the right when sitting. Is this a symptom of MSA? He also has to hold on while standing. He is loosing all upper body strength.
He was Dx w Parkinson’s 8 years ago