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I Wanted To Ask If Anyone Has A Problem Talking To Family About PD... Or Does Your Spouse Simply Ignore The Fact That You Have PD ???

I Wanted To Ask If Anyone Has A Problem Talking To Family About PD... Or Does Your Spouse Simply Ignore The Fact That You Have PD ???

A MyParkinsonsTeam Member said:

My husband was in the health care field for 50 years, so he understands it well. However, I think he doesn't want to hear about it from me because there is nothing he can do to improve my condition, and that is frustrating for him. I think he wants to fix it, and he can't. He also does things for me that I can still do for myself, but I let him because that is something he CAN do to help improve my circumstance. I am just grateful that he wants to care for me, so I say, "Thank you," and bask in his attention. He always goes with me to my Dr. appointments, and we discuss the ramifications of what we were told all the way home. However, other than that, he listens politely but would rather not hear daily updates on my condition. I feel the same way when I hear about his diabetes and heart condition. i want to fix it.

posted over 4 years ago
A MyParkinsonsTeam Member said:

My husband talks about his condition daily--I respond to all his needs --which are many-- daily. He relies on me for all his care. I cannot imagine anyone living with someone with PD to be able to ignore it even for a day.

posted over 4 years ago
A MyParkinsonsTeam Member said:

i don't hide my PD. I told my wife as soon as I was diagnosed. I told my kids soon after that. It is better to know the truth than to worry about imagened things that could be worse. My wife comes with me to movement disorder Dr. It is good to have two sets of ears to hear what is said and remember questions. I tell my friends, if they notice symptoms. It is good to have support. Honest communication is the backbone of a good relationship.

posted over 4 years ago
A MyParkinsonsTeam Member said:

No. My family, friends and close neighbors know that I have PD and are very supportive. I write about my PD on my Facebook page pretty regularly. I don't mind telling people that I have PD.
I am a counseling professional and I do not tell my clients about my PD, unless they notice my symptoms and that very rarely happens. I try to time my medications so I do not need to take them with a client present. If that does happen, I just say I need to take a pill.

posted over 4 years ago
A MyParkinsonsTeam Member said:

Zanne, I can relate to to doing tthis PD alone... My Hubby seems to be doing much better since I am not holding back ... I will & hope you keep in touch...

posted over 4 years ago
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