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Has Anyone Had Interesting Discussions With Family Members Concerning The Future

Has Anyone Had Interesting Discussions With Family Members Concerning The Future

I do understand being a caregiver for someone with PD can be difficult but something my husband said recently has been bothering me. He said he will have to go into a nursing home now when he gets older because I won't be able to take care of him now. Has anyone else had some interesting comments from family members.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. I think about it all the time. I'm the pt. not the caregiver I haven't brought it up with my husband. I'm relatively young (60) been dx for 2 yrs but looking back it was going on much longer. I'm very active and I think that helped stave it off for at least 10 yrs. I've tested positive for Laark 2 gene mutation so there's really no doubt. My concern is also about my advanced directive. I've brought it up with hubby but I don't think he was ready to hear about it yet. It's all very hard n confusing at times isn't it!

posted over 4 years ago
A MyParkinsonsTeam Member said:

I very much agree with FoViola

posted over 4 years ago
A MyParkinsonsTeam Member said:

as it progresses yes it can be very hard on you his care giver, now here is some suggestions that you can try to have in place for your self and your husband to perhaps take some of the load off your mind, check into in home care if you guys have this in your health care system witch im sure you guys would, a C,C,A or P,C,W comes into your home to help with some of the load, this can prove to be helpful for you and him now this is somethingh you would have to discus with your husband, check into it first see what info you can find out check into long term care witch is a nursing home it is best to get his name on a list for that as the wait list can bee very long. hugs to you you are a very strong willed person

posted over 4 years ago
A MyParkinsonsTeam Member said:

My husband 43 years after the everyday that he will be there for me forever but I don't want him to have to take care of me I feel guilty

posted over 4 years ago
A MyParkinsonsTeam Member said:

we will b living with my daughter and her husband in our own little house that is attached but it is ours. we r fortunate b/c i have terminal emphasemia also.

posted over 4 years ago
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