Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

This has been going on for a year. I have had cycles of insomnia for years. It started to to increase to 3-4 days per week (2-4 hrs per day). Now it is every day. I am taking bout 5 medications to help me sleep and each time a new one is introduced they might work a night or two but then I am right back to 2-4 hrs per night. I am still working. When I bring up retireing my neurologist says she wants to "optimize my medications" first before considering it. I explained to her my concerns It was… read more

May 4, 2016 (edited)
 · 
Reactions
A MyParkinsonsTeam Member

@stone34 It has been 7 months since I've been dealing with insomnia. Spoke with my internist today and he said, "You must sleep." Then explained how insomnia complicates all processes of the body. Believing my other MD who put me on a medication and said "take it daily nd in 6 months you'll be sleeping." It's been 6 months and I'm sleeping at least one night a week for 12 hours and other days I sleep 6-8 hours. It takes a long while for the meds to build up in our bodies and then it takes effect. I trusted my MD and it worked. I must be careful to regulate the temp of the sleep environment as that will interrupt sleep very quickly! Hope you get sleep soon. Only you can decide if you need to retire. Taking a leave to evaluate your needs sounds reasonable. Good luck. Truzie

May 23, 2016
A MyParkinsonsTeam Member

Have you tried a sleep clinic? A lot of teaching hospitals are into this issue recently, they would probably love to get you in a program b/c of the PD complications.

Also, you might want to consider changing your internist ? A second opinion perhaps? (Use a different practice if you do this).

good luck, I am now on my way to bed to toss around until 3 - 4 am

May 9, 2016
A MyParkinsonsTeam Member

I was having so much confusion at my job, memory lapses, panic attacks, crying jags--I confided in a colleague who recommended I talk to a disability lawyer. So very glad I did --in 4 months I was approved for disability. A tremendous relief

September 11, 2016
A MyParkinsonsTeam Member

I retired due to this sympton and others.

May 13, 2016
A MyParkinsonsTeam Member

Lack of sleep is disasterous for PD symptoms. Here's a recent review article about why and how to fix it in a leading journal:
http://onlinelibrary.wiley.com/doi/10.1002/mds....

May 6, 2016

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Sardis, MS

A MyParkinsonsTeam Member asked a question 💭
Toronto, Ontario, Canada