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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone have suggestions regarding staying asleep.

A MyParkinsonsTeam Member asked a question 💭
Toronto, Ontario, Canada

I have no problem going to sleep but find in the middle of the night my hand tremors wake me up and end up tossing and turning most of the night without a restful sleep. Sometimes I do not believe I have any REM sleep cycles. Currently taking Elivil 20 mg (non addictive or habitual) and somewhat helps a little. Open to hear of your suggestions. Many thanks.......

July 22, 2016
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Answer Summary

Members openly shared their varied experiences with sleep disruption caused by Parkinson's disease, including tremors, restless leg syndrome,... Read more

Members openly shared their varied experiences with sleep disruption caused by Parkinson's disease, including tremors, restless leg syndrome, frequent waking, and sleep apnea, with many finding that fragmented sleep (2-4 hour stretches) has become their new normal. Several members described practical strategies that have helped, including extended-release Carbidopa-Levodopa or Sinemet CR at bedtime for tremors, medications like Mirtazapine, Trazodone, Zopiclone, Clonazepam, and Gabapentin, CPAP machines for sleep apnea, weighted blankets for restless legs, and CBD oil or cannabis edibles (where legal) for sustained sleep and symptom relief. A recurring theme was the importance of experimentation and patience in finding what works for each individual, with members emphasizing exercise, warm baths, routine, stress management, calming bedtime rituals like audiobooks or soothing background noise, and open communication with neurologists or movement disorder specialists about all options including non-traditional remedies.

A MyParkinsonsTeam Member

Hi.
Try to keep a pair of socks or something easy into your tremor hand .
Or sleep with a pillow in your arms and hug it . It keeps the hands muscle active and give you peace.
Hope that helps.

March 10, 2019
A MyParkinsonsTeam Member

I recently got a small amount. I was blown over! All my symptoms gone. No pain, tremors, mood swings, muscle issues. I felt almost normal. Even my daughter noticed, but she didn’t know why. I finally told her. Unfortunately, my access is gone and so is my supply. I would almost be willing to move to a legal state if I didn’t have medical issues. Doesn’t seem right. Take a look at what alcoholism does to a person.

September 6, 2021
A MyParkinsonsTeam Member

I've tried everything to no avail, exercising, going to bed extra tired, taking melatonin, magnesium and a host of other pills including some CBD oil, which is good for falling to sleep fast, but.... nothing helped me sustain sleep for more that 1.5 hours EXCEPT what I've been doing for the past 6 months at least, eatable weed (Marijuana). I learned to cook it into butter which I spread on a toast at night a couple of hours prior to my bedtime, and ... it works reasonably well for me (it may not work as well for someone else), I do get 5 to 6 hours straight sleep with this.

One has to figure out what is the minimum amount of butter required to accomplish sustained sleep, it's a trial and error sort of thing because one never knows the exact potency of the weed you are cooking so you end up with batches that are very weak (you need to take more), and batches that are fairly strong (you need less), your body weight, size, condition, and personal factors also determine how much butter you require.

Anyway, this is what is working for me for now, it's definitely not the best solution but I've exhausted all other alternatives, sleeping a bit more has enabled me to continue working full-time and carrying out a quasi-normal life.

Cheers!

October 21, 2019
A MyParkinsonsTeam Member

I tried CBD oil and melatonin but it didn’t help. Finally got relief with edible cannabis. 15 mg thc, indica isfor sleep. No negative effects and I don’t get high. Take 3 cannabis infused chocolate covered blueberries and it really helped me. It’s not for everyone but I talking to my movement disorder specialist it’s better than clonazapan which was my next option. If you try it only take one and see.

September 18, 2018
A MyParkinsonsTeam Member

CBD oil is the only help I have ever found for waking up through the night. I haven’t tried marijuana since I also live in a state where it is still illegal…and being a retired USAF officer being a drug user isn’t a good idea. I would if I could…
Take care and God bless you all. I don’t write much but I do read and respond where necessary.
V/R
Major Phil.

September 7, 2021

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